Ms Anna-May Long

Anna-May is keen to understand how to improve the care of children and their families by generating evidence to guide practice, identifying the best ways to assess the outcomes of surgery and learning from the experiences of parents.

Anna explains that having a baby that needs surgical treatment can be a time of great uncertainty for parents.

Parents will discuss with health professionals plans for where, how and when the baby will be delivered.

Anna describes how a diagnosis might be made after the baby has been born.

Babies needing surgery are often transferred to a specialist centre and a number of teams will be involved in their care over time.

There is a very wide spectrum of procedures and operations that babies with these conditions might need. Anna gives us a general picture of what happens to the baby before and after surgery.

Anna explains what a hernia in the groin is, and why it is important to operate on them.

Some conditions can be diagnosed during pregnancy. Here Anna describes how an antenatal diagnosis is made.

Hirschsprung’s disease is one of the conditions that are often only picked up after the baby has been born, when they start to feed and develop.

Anna explains a condition called necrotising enterocolitis (NEC), which can develop after a baby has been born.

Anna explains a condition called atresia, a blockage in the bowel.

Anna explains that this website is about parent’s experiences of having a baby who needs surgery. These conditions are rare, and we felt it was important to hear ParentsÕ experiences.

Anna explains two conditions that can be picked up on a routine scan in pregnancy, exomphalos and gastroschisis.

Another condition that is often picked up in the womb is congenital diagphragmatic hernia, or CDH.