Maya

Based on hearing that there was a small risk of transmitting HIV through breastfeeding, Maya chose to formula feed. She felt supported by her consultant, who talked about how women have many reasons for not choosing breastfeeding, not just HIV.

Maya was born in an east African country and came to the UK when she was around 10 years old. She describes herself as a sickly chil. She believes she was most likely born with HIV. She grew up hearing stereotypes about people with HIV and AIDS joke at school. At 13-years-old, she tested positive for HIV and started HIV treatment. Her nurse told her she could live a normal life.

Maya is from a large family, and one of her younger siblings was diagnosed with HIV and later died of HIV complications before Maya found out about her own HIV status. Her mother, sister and pediatric nurse were particularly supportive when she was a teenager.

Because of her age and when she was diagnosed, Maya has been familiar with the ways the BHIVA guidelines have changed over the last decade. She booked an appointment with medical team when she was thinking about becoming pregnant.

For peace of mind, Maya’s fiancé takes an annual HIV test; they have been together for eight years. Maya was told that breastfeeding was a personal choice, but formula feeding would remove all risk of transmission. A month before she became pregnant this time, Maya had a miscarriage and this made her and her partner want to focus on making safest decisions during her current pregnancy, so they decided to formula feed.

Maya’s baby was delivered by emergency cesarean section, and the exhaustion and recovery that followed made her feel quite relieved that she didn’t need to breastfeed as well. Maya found formula feeding difficult at first. For example, she worried that her baby’s milk allergy and eczema was due to being formula fed.

When family and friends, who are not aware of her HIV status, ask why she is not breastfeeding, her and her fiancé say that is what they wanted to do and do not expand any further. Maya is of Black Caribbean heritage, and that although there are cultural expectations to breastfeed it is less pronounced in her generation.

Maya received free formula milk through a local HIV charity that her HIV clinic referred her to. As well as formula milk, the charity provided her with bottles and a sterilising set.

Maya and her partner did not worry about formula feeding.

Formula feeding allowed Maya to share feeding duties with her partner, which was especially helpful while she was recovering from her delivery.

Maya and her partner went to the medical appointments together. They had recently had a miscarriage, and with the Covid pandemic still around, their main priority was to minimise all risk for their baby.

Maya and her partner wanted to choose the safest option for their baby.