Luke

Luke experienced depression in his mid-teens and later had strong delusions. He was given a diagnosis of bipolar disorder. He has been sectioned twice and now manages his psychosis with self-help and medication.

Luke first saw a counsellor when he was 12 years old. He was having a difficult time with his family at home and was disruptive in class. But soon after the counselling began his family relocated and Luke moved to a new school. By his mid-teens (age 15-16) he started to experience depression. During this time Luke found it difficult to sleep at night and get up in the morning. He also began having problems with anxiety and at the age of 17 he started having his first suicidal thoughts. He was assessed by a psychiatrist who said that Luke had tendencies of schizophrenia and a bit of psychosis in the background but did not give him a full diagnosis. Luke was frustrated by this because he felt that without a diagnosis he didn’t have a reason for feeling low. It was some years before he was given a diagnosis of bipolar disorder, which he says was a relief because he was then given more appropriate support.

When Luke left sixth form college he had managed to get the grades he needed for a good job he’d been offered in a multinational company. He felt like he’d achieved something massive by getting through sixth form with good grades and had overcome something huge. However, two weeks after beginning his new job in September 2014 Luke experienced symptoms of psychosis. At times he would feel like people were watching him, and at other times his mood would change and he would feel like he had great ideas and that he was going to change the world. He could go three to four days without sleep. Luke’s father, who experiences bipolar disorder himself, immediately recognised Luke’s symptoms and sought help. After several visits to A&E he was finally given an assessment by a team of psychiatrists and was admitted to hospital involuntarily under a section of the Mental Health Act.

Luke spent five or six weeks in hospital and received intense care and medication. Catching up on sleep was also important. During his first week on the ward Luke described himself as being a nutter and a bit destructive. He says that when you’re psychotic and in hospital under section you feel a little bit scared, trapped. Being in that situation you become violent and a horrible human being. By the second week in hospital, however, Luke found that he was adjusting to his treatment. He began indulging himself in occupational therapy and found the ward was kind of like an idyllic recovery place for him. During his stay on the ward he made a few close friends and continued visiting the ward and members of staff after he was released. Luke was sectioned for a second time in March 2015.

While Luke recognises how catastrophic psychosis can be he appreciates that psychosis allows him to see things in more abstract ways and gives him a different level of perception. His experience of bipolar has made him rethink his career path and has made him more altruistic. He mentors someone younger than himself, who is now like a friend, and he finds being a mentor is like looking into the past. He has worked on and off over the last few years, but was signed off from his last job due to manic depression. It has been difficult financially, but he blames this partly on his own impulsiveness and love of gambling. Luke did apply for a Personal Independence Payment (PIP), but was refused (as he was told was the usual outcome) and he chose not to appeal.

Luke receives a lot of support from his family and friends, and they regularly visited him in hospital. Luke was in a long term relationship in his late teens and is unsure what it will be like to start a new relationship with someone now he has a diagnosis of bipolar. He isn’t sure how or when he would tell the person about his mental health experiences.

Luke has regular contact with a community practice nurse, who is brilliant he really listens to him, whereas his psychiatrist, is just looking for a diagnosis.

Day to day, Luke sees psychosis as a small part of his bipolar. Ideally Luke’s game plan is to reduce the regularity of his psychotic episodes. He manages his psychosis partly with medicine and partly through self-help. He takes quetiapine (anti-psychotic) and lithium which have side-effects such as weight gain, thyroid problems, and fatigue. Luke finds that listening to music helps him control his emotions. He also finds it important not to drink too much alcohol because he has found drinking (and being hungover) puts him at risk of having a psychotic episode. He has started walking more as it gives him a sense of achievement on days he is feeling depressed and unable to do anything else. He is currently having one to one CBT sessions which he feels may help his psychosis and also help him find out more about himself. Luke says he has a lot of energy and thinks he has reached a point where he feels ready to do a degree at university.

Luke says that patients should be treated like non-executive directors, and valued for the perspective they are able to give into their mental health experiences.

Age at interview 21

Gender Male

Age at diagnosis 19

Recovery from the experience of psychosis through treatment in hospital happens pretty quickly for Luke, although the post-psychotic depression lasts longer. His game plan is to reduce the regularity of the psychotic experiences.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke finds that drinking alcohol socially makes his psychosis worse. Cutting down has improved his mental health. He thinks it’s important to have the maturity to do that.

Age at interview 21

Gender Male

Age at diagnosis 19

Having psychosis has made Luke challenge this thoughts about religion.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke listens to music all day and says it numbs out the voice in his head and helps him control his emotions.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke accepts that when you’sre in a bad place you can’st achieve much. So when he has good days he likes to recognise what he’s achieved.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke broke up from a 4 year relationship just before he was feeling suicidal. He describes how his ex-girlfriend rode the waves of his bipolar disorder with him but feels relieved now that he doesn’st have to worry about anyone else.

Age at interview 21

Gender Male

Age at diagnosis 19

Before his psychotic experience Luke, who was later diagnosed with bipolar disorder, suffered from depression. He struggled to concentrate in lessons and only one of his teachers noticed.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke applied for PIP but didn’st get it. He describes what it is for and some of the questions he was asked.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke thinks mental health should be part of the school curriculum.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke said while people under 18 would be able to show compassion for someone who has cancer, they find it more difficult to understand mental health issues.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke’s brother saw the signs that he was unwell and got in touch with him just as he was contemplating suicide after his first experience of psychosis.

Age at interview 21

Gender Male

Age at diagnosis 19

At first Luke didn’st enjoy his CBT sessions but he now looks forward to them. They help him find out more about himself.

Age at interview 21

Gender Male

Age at diagnosis 19

During the first week in hospital Luke was scared and destructive, but after the medication began to work he returned to being his normal self. He has great memories of staff on the ward and goes back to see them.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke compares the support he gets from his CPN, who is brilliant with his psychiatrist and GP.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke remembers a hundred percent of his first experience. He was two weeks into his first job in the city when he began to experience delusions.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke, who was diagnosed with bipolar disorder, experienced depression since his early teens. He started having delusions that MI6 were onto him soon after starting a new job and moving to a big city.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke describes putting information together in illogical ways and reading meaning into everything.

Age at interview 21

Gender Male

Age at diagnosis 19

Luke’s father, who himself had experienced bipolar disorder, recognised immediately that Luke needed help.

Age at interview 21

Gender Male

Age at diagnosis 19