Lucy
Lucy was diagnosed with psoriasis at 11. She has tried different medications and three courses of light therapy. She is very encouraging of the need for more awareness and support around the emotional and psychological impacts of skin conditions.
Lucy was diagnosed with psoriasis when she was 11. She first noticed that her scalp was very itchy. She went to see her GP who thought it might have been seborrheic eczema. When the eczema treatments didn’t help, the GP suggested it could be head lice but once again the treatments didn’t work. Lucy was referred to a dermatologist who took a biopsy of skin from under her arm. The results came back that she had psoriasis. Her psoriasis has since affected other parts of her body, such as her chest, back and legs. She finds that certain things can make her psoriasis worse, such as stress, processed foods and sometimes alcohol. She uses exercise and meditation to try and limit the impact of stress. She finds that religious services and sites, such as the waters of Lourdes, can be very calming for her. Lucy also tries to drink a lot of water every day and finds that she can see improvements in her skin when she has a healthy diet.
Lucy has tried different medicines for her psoriasis, such as cyclosporine and methotrexate, but found that the latter had unpleasant side effects such as nausea. She has also had three rounds of light therapy treatment which have all been very successful. Lucy says that her experience of medical professionals, including dermatology consultants and nurses, has been fantastic. In the hope of helping her psoriasis, she tried using tanning booths in shops for a little while but stopped when she was burnt and thought about the health dangers involved. She has tried some home remedies: she finds that olive oil rubbed into her scalp helps a lot, but that coconut oil can cause her skin to react badly.
Lucy is very aware of the emotional and psychological side of psoriasis. She has sometimes missed out on going out and seeing friends because of her psoriasis and the emotional impact it can have. When her skin is sore and she feels frustrated with it, she may want to stay home but pushes through because doesn’t want this to become a habit. Lucy has also experienced hurtful comments before but she believes that some people say such things because they are ignorant about psoriasis. Lucy sometimes uses clothes, make-up and hair styles to minimise the visibility of having psoriasis and to boost her confidence. She finds that bright or patterned clothes mean that skin flakes are less visible. Make-up can give her extra confidence, especially on occasions when she wants to make a positive first impression, such as job interviews. She has also used a fringe and scarves to cover some patches on her hairline. Whilst appreciating that these things can increase her confidence, she also feels very strongly that nobody should feel that they have to cover their psoriasis and she received compliments when she went a day without covering up the psoriasis on her head for awareness-raising on World Psoriasis Day.
Lucy says that support, online and in person, is really important. Her family, boyfriend and friends have been incredibly supportive. Her parents have provided her with opportunities to talk as well as give practical support, including paying for private dermatology appointments early on in her diagnosis and researching alternative psoriasis treatments. Lucy’s boyfriend has also been very supportive. She was nervous about telling him she has psoriasis when their relationship was becoming more serious, but felt it was important, especially because psoriasis can affect intimate areas of the body. There was very little formal support available for young people when Lucy was diagnosed and growing up with psoriasis. She thinks that having psoriasis at this age can be particularly tough because it is when young people are finding out who they are and what they want from life. She is now very involved in providing support to others. She has blogged about her experiences with psoriasis and is a project manager with the charity Mind & Skin. She feels that creative arts are also important and, in addition to a novel she wrote in which the two main characters have psoriasis, she is involved in a project collecting written and visual pieces about skin conditions.
Lucy’s advice to young people is to maintain treatment routines and to talk to supportive friends and family members, saying just don’t be silent about it. She encourages dermatology professionals to be more attentive to emotional and mental health. Lucy thinks there should be more support to help young people with psoriasis in schools too. She previously worked as a secondary school teacher and she is very aware of the difficulties students can have with such health conditions. She encourages teachers to be understanding and do their own research so that they can find ways to make the classroom a better environment for their students affected by different health conditions.