Lisa

Lisa’s was a high risk pregnancy due to osteogenisis imperfecta and symphysis pubis dysfunction. After a long labour her baby was born safely, but she then started to haemorrhage. Doctors were unable to stop the bleeding and performed an emergency hysterectomy to save Lisa’s life.

<p>Lisa&rsquo’s life threatening event took place 13 months before her interview, during the swine flu epidemic of 2009. Her daughter survived and is well. Lisa had high-risk pregnancy due to a condition called osteogenisis imperfect (a condition causing extremely fragile bones.) and symphysis pubis dysfunction (SPD) which causes excessive movement of the pubic symphysis causing inflammation and pain,which left her wheelchair-bound for last few weeks of her pregnancy. She developed cholestastis (build up of bile in the blood stream) and was asked to go in to hospital to be induced at 39 weeks. She arrived on a Thursday night, her labour did not progress for 3 days. When her labour did finally start, she was exhausted, in extreme pain (with no pain relief) and felt as though she had been ignored by staff for days. She asked several times both before the birth and during labour for a caesarean section, but was refused. She was finally put in stirrups and forceps were used to deliver her daughter, despite these being written on her notes as not advisable.&nbsp;</p> <div>&nbsp;</div> <div>Lisa was given her baby, who started breastfeeding immediately, but she soon started haemmorhaging. Lisa was rushed off to theatre and went on to haemorrhage three times. She woke up in intensive care (ITU) three days later. Staff bought her newborn baby to see her in ITU and were very kind, helping her to try and breastfeed. But once she was back on the maternity ward (in a single room) she felt the midwives discouraged her from breastfeeding, and she wasn&rsquo’t able to re-establish breastfeeding. She felt the care on the maternity ward was not good, and after about a week she discharged herself in the middle of the night. Lisa was wheelchair bound for a long while, did not go out of the house much and could only walk for 15 minutes at a time. Her GP had been very supportive and she was offered counseling.&nbsp;</div> <div>&nbsp;</div>

Lisa found it hard to talk to friends about her hysterectomy. She felt they could not understand…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa was given fantastic care by her local GP after her haemorrhage and hysterectomy but…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa feels that the most difficult thing to cope with is that she will never have another baby.

Age at interview 36

Gender Female

Age at diagnosis 35

When Lisa woke in intensive care she could not understand at first why the nurse told her, ‘Oh,…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa said that she and her partner were in such a bad way in the early months, they thought about…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa felt terrible that she felt so confused about her baby when she came round from her…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa only experienced an hour of breastfeeding before her haemorrhage. After the emergency she…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa was given fantastic care and support by her local GP once she came home after her…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa had a haemorrhage and hysterectomy. She went back to see the obstetrician for a six week…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa had a long, difficult labour and her daughter was finally born with forceps. She was holding…

Age at interview 36

Gender Female

Age at diagnosis 35

Lisa was shocked when she woke up. Her partner looked bedraggled and she was surrounded by…

Age at interview 36

Gender Female

Age at diagnosis 35