Lesley

Lesley has ankylosing spondylitis (a type of arthritis that affects part of the spine). Despite treatment for this, she continued having pain in her right knee. She had a partial knee replacement in 2014 and is now more active than before surgery.

Around 2012 Lesley developed pain in most of her joints, including her knees, arms, legs, neck and back. She was misdiagnosed with polymyalgia rheumatica (a condition that causes severe stiffness and pain) and was given steroids for two years. However, following a referral to a specialist, she was diagnosed with ankylosing spondylitis (a type of arthritis that affects part of the spine). She was then prescribed medication and had an injection every two weeks, but continued having problems with her right knee. She also tried a steroid injection but the pain continued to increase and her knee became more swollen. She recalls finding it difficult to cross the road because her knee would give way, being uncomfortable at night, being unable to bend down, and being unable to do activities with her grandchildren. This began to impact her quality of life and she eventually said I can’t carry on like this and went back to her GP for help.

Following an x-ray, Lesley was diagnosed with osteoarthritis and referred for a partial knee replacement at a specialist hospital. During her pre-op assessment in February 2014 she remembers having blood tests, urine tests, an x-ray and an ECG. She also remembers the physiotherapist showing her some information videos and was told how to access them on the Internet. Lesley found it very helpful to watch these videos with her family and said that they answered all of their questions. She found them very reassuring because she felt like she knew what to take with her to the hospital and what to expect on the day of the operation. However, she thought it would have been more helpful to see the video about the pre-op assessment before the actual appointment.

In April 2014 Lesley went into hospital to have the operation. She remembers feeling anxious the night before but said that having to wash with hibiscrub (an antiseptic wash) was a good distraction. Before her operation she was seen by the anesthetist who was concerned about her ECG results and asked whether she would consider having a local anesthetic instead of a general anesthetic. She decided that she would prefer a general anesthetic, and later saw her GP who confirmed that her heart was fine. She remembers waking up in the recovery room feeling a bit tired and groggy, and seeing a nurse who told her that her husband had rung to make sure everything was okay. Lesley was given an injection to numb her leg but doesn’t remember being told about this beforehand. She didn’t expect her leg to be numb when she woke up but said the nurses explained more about this when she asked. She also had a drip in her knee. Later that day she was moved to a ward with four other women.

The following day Lesley was seen by the physiotherapist who gave her some crutches and showed her the exercises that she needed to do. She remained in hospital for three nights because her medication made her feel dizzy. Before she was discharged, the nurse showed her how to change the dressing and how to give herself a daily injection (to thin her blood and prevent a blood clot). She was sent home with her medication and information about the daily exercises that she should do.

One month after the operation Lesley fell in the bathroom, falling on her knee. She believes this delayed her recovery because it increased the level of pain and swelling, and reduced movement. Despite the pain, she continued to do exercises and the swelling eventually went down. Although Lesley wasn’t back at work at the time of interview because she found it hard to bend her knee, she believes that she is more active than she has been for a long time. She recommends that patients eligible for a partial knee replacement should have it because it opens a new window and improves your quality of life’. She also said that the health professionals were tremendous, friendly and reassuring’.

After the staples and dressing were removed, Lesley had dry skin. She massaged her knee and the top of the thigh with body lotion.

Age at interview 58

Gender Female

The health professionals were tremendous’ and the hospital felt like a hotel. Lesley shared a room with 4 other people and they supported each other.

Age at interview 58

Gender Female

Lesley watched the TEPI videos at home with family. They were simple, straightforward and it was interesting to see the implants that would be going inside her knee.

Age at interview 58

Gender Female

Lesley wishes shed taken someone with her to the pre-op assessment. She was given a list of professionals shed see but would have liked to watch the video beforehand.

Age at interview 58

Gender Female

Lesley, who had a nerve block, was worried why she couldn’t feel her legs when she came round. When the anaesthetic wore off, she could move her toes and felt fine.

Age at interview 58

Gender Female

Lesley did the exercises in the booklet 4 or 5 times a day. A video would have been reassuring. She couldn’t bend her knee flat and is now doing exercises to improve this.

Age at interview 58

Gender Female