Well I just
think that it’s a good thing to do because it does make you understand more,
you know, like what, why, why you may have it and stuff because obviously the
options are like obviously there was one which is actually the proper reason
why, so it does make you understand a bit more of it. You know other people
have it and they think of like this type of thing. I just really enjoy filling
in because I know that other people have to fill them in it’s not just me.
Because I know that they get sent off to like 100s of other people that have
the same problem as I do.

Does that make you feel like you’re contributing?

Yes.

Yes, so that makes you feel a bit easier really,
you’re not alone?

Yes.

I think that,
I think it’s good because obviously they could help others which is helping
themselves. So I think it is a good thing to do but obviously like people don’t
have to do it obviously if they don’t want to then that’s fine but you know
like people are like oh I guess I could it is a good thing to do type of thing.

They were like, you get an appointment to go and see her. And she
just like asks you about like how you are and stuff and then she says like I’ll
send you some questionnaires and you get a packet about that thick. Just full of
questionnaires and they’re just, I think it’s just to try and figure out like
how well people are coping with it and it’s obviously like your young and it’s
just like how you’re coping with it and if they can help you in anyway.

Yes, yes that’s
good. And what sort of, were there lots of questions, I mean what was it, was
it a long questionnaire?

Yes, yes there’s quite a lot of questionnaires like there was some
for me and some for my m and dad.But
they, they generally like repeat the questions but in different like word it
differently. So obviously see like on average like how you are actually coping
and stuff.

Yes, and how
many, about how many questions are there, is there lots?

Like there are lots.

How many pages
like three, four?

About ten.

Ten pages.

Yes.

It is long then.

Yes.

And are they
short or long answers or?

it’s just like tick a box type of thing and but there’s one set
because they’re like little booklets, you know, like an A2 booklet folded in
half. And it’s just like saying, you know, like there’s some that you have to
actually write how you actually feel that you’re doing and like stuff.

So there’s some
that you have to give explanations for?

Yes.

And some are just
yes, no?

Yes. Some are just like tick the box, put like the mark on like
your pain and stuff that over past month or something.

Ah okay. So how
do they measure your pain?

Well it’s just like there’s like a little, a little line and it’s
like zero no pain, a 100 like really painful and you just like mark on where like
you think you are like the past month. And there’s like how well are you coping
with it zero to 100.

Ah okay so
they’ve got measures there and you just put a cross where you are at that time?

Yes.

Yes and I mean
did you find it easy to complete?

Yes it gets me quite upset sometimes so it’s like you’ve got to
think about how you’re coping and stuff and it does like get me quite upset
because obviously like I know but they are easy to do as long as you don’t get
upset.

And what sort of
questions does it, is it because it makes you think about it?

Yes it’s just like saying because there’s one that makes you cry
and it’s like why do you think that you have this and there’s like because you
actually have to like write down what you’re thinking, it always makes me
really upset because obviously like you don’t know. And like some days like
you’ve had like a bad couple of months you just like why have I been given this
type of thing.

So it makes you
question yes why you have the condition.

Yes.

Yes and do you
get a lot of pain with your?

Because I
know that like if, you know, like if they found out that it does help better
then I’ll be helping myself and I’ll be helping other people for better
treatments.

Yes, do you think that’s important?

Yes.

Yes so that would be a key motivation?

Yes.

And do you think that’s what was behind you wanting to take part this
time?

Yes.

Yes helping others. And do you think you have
gained?

Yes.

In what ways?

I don’t know
I just feel good.

You feel good.

I felt like
helping because I know that it, well it might help but it might not but I still
want to try.

Yes that’s poignant thing isn’t it that you’re
trying?

Yes.

So how have the questionnaires changed then over
the years can you remember?

they’re just
like as I’ve got older they’re more about like emotions towards it because
obviously when you’re little you don’t particularly know anything but obviously
when you grow older and you’ve been going for a long time then you kind of
understand it a bit more so they just get more about your emotional side of it.

So what did they ask when you were younger then was
it more?

I think it
was more just like your pain and like do you understand that you have this
which was like yes. And like do you know what treatment you’re on and do you
know what that does but obviously like you don’t actually know but like I do
now.

Was it, does it help filling in the questionnaires,
has it helped you at all to understand?

I think it
does give you a better understanding, not because like obviously it tells you
stuff but especially like the multiple choice it gives you options to pick from
so then you kind of understand what other people think so then you kind of
understand it a bit more.

Do you think that
would be nice to meet other people?

Yes definitely. Because Ive never met anybody else who has
arthritis and I kept, at my age obviously like you know, like old people that
have it but I’ve never met anybody that’s going through the same thing that I
have but I know that people are.

Right so yes, so
you’d like to meet others who are perhaps having the same treatment?

Yes, yes and like what they feel about it type of thing and like,
you know like people can help each other because they know, because like
obviously like your mum and dad they’re always trying to help but obviously
they don’t know what it’s like. So I think if like I knew somebody else that
was finding things difficult and like I could help them and they could help me
type of thing.