Jim – Interview 25
Jim was first tested for sexually transmitted infections when he found a penile lump. A subsequent biopsy confirmed a diagnosis of cancer in early 2010. He underwent a partial penectomy and has been reviewed every three to four months.
Jim first noticed a small lump on his penis in June 2009. However, devastated by the recent death of his son he thought little of it. It grew in size over the next four months and eventually opened up. It wasn’t until January 2010 that he decided to see his GP who referred him to his local hospital. Here they tested him for several sexually transmitted diseases which revealed nothing and so he was referred on to a consultant urologist at another hospital. Jim was told that the lump might be malignant and when a biopsy confirmed the diagnosis he was admitted for a partial penectomy (it was now march 2010). Years earlier he had undergone a circumcision and he was told that this might have been the precursor of the cancer.
The operation involved removing the head of the penis. Jim now feels that had he gone to his GP sooner, this might have been avoided. He was in hospital for a total of five days and was surprised at how little pain he felt. His overwhelming memory of the experience is hating the catheter he had to wear, something he found uncomfortable and awkward.
Throughout his ordeal, Jim was supported by his sister and his daughter, although he hadn’t taken anyone into his confidence until he had seen his GP. He found it relatively easy to share personal information with his close family and friends as they had been very supportive following the death of his son. Everyone was shocked and saddened by his news and everyone was there for him when he needed them.
Jim was given some information about penile cancer and its treatments, and searched online for additional resources. He felt that none of it was in sufficient depth or detail. He felt that his emotional needs were particularly ill served.
Returning to work after three weeks Jim found that the only problematic aspect of his treatment was difficulty with directing the flow of urination. At first he found he had to sit down when using the toilet but now he’s started to stand again. He attends the hospital for check-ups every three to four months and had ultrasound scans to make sure there are no cancerous cells in his inguinal lymph nodes. Lumps have been detected in his right lymph node but at this stage they are fatty lumps rather than cancerous cells. It is now eighteen months since the operation and Jim is looking forward to his test results remaining clear over the next five years with his check-ups becoming less frequent.