Well, I went in because I started to hallucinate.And they were sorting me tablets out.But one night I was pretty bad, very bad.Not that I remember.I remember shouting, and I’ll never forget that. And the doctor or someone come round here, it wasn’t my doctor, no way, and they saidto, Go to the hospital tomorrowWhich [husband] did do,he took me up there.And that, that was a Friday, and then they said,You’ve, you’ve got a water infection.So you should really be inThat was on the Friday.And on the Saturday when I went up there, you had to see the doctor obviously to get in, they said, I don’t know what this one’s here for.She needn’t be hereSo somebody said, She’s got a water infectionHe said, She, no, she hasn’tHe said, whatever the word was he used, he said, That’s common they get now and again when they’re on tabletsBut they was in, they were adamant I was going to have to stay there.So that was there, that was on the Saturday.And on the Saturday they decided, We don’t understand your case, so we’ll take you off your tablets

So at this point they’d taken you off the tablets?

Yes.

And had you started to have all the symptoms come back yet?

Yes, that’s what I say.I couldn’t walk and I was shaking, just shaking.And [husband] got me up to the, well, he phoned up the professor and he got me up there.

And did he say that the hallucinations had been caused by the tablets?

Yes.

He did?So did he change the tablets?

Yes, he knocked them right down.And in actual fact when he knocked them down, that wasthe start of my legs starting to ache like.But as he said, he’s having to find a happy medium, you know, with the tablets they ain’t working.He said like, If I, if I give you more, you’ll be perfect walking all of the time and you wouldn’t ache.Bu he said, you’d have these hallucinationsSo he had to cut them down.

I used to get like top of me left, at the top of me left leg, like a nerve kept jumping. And I had that on and off for about a year before it started to, it worried me. And then when I would get up and I was moving about it would stop again. And then when I sit down I used to cross me legs somehow to stop it moving and it could do that for a couple of hours. So I thought, Oh, it probably is just a nerve But then I started getting, as I went to move sometimes I, I found me feet wouldn’t go as I wanted them to go. And my husband come home one evening from work, and I was really bad with me legs, and he said, I’ll take you down to the doctor’s. You’ve had that for a long time And I went down to our doctor’s, and they’re a practice, they’re one of six. And if you go down you can see anybody without an appointment, but you can’t see your own one unless it comes up you can. Anyway he spoke to me and then he said, just said, Wel you know, he couldn’t see anything, It will be all right So from that time I, I really did sort of just struggle along. I used to get up with My husband, do his sandwiches for him to go to work. Then I would do that, then I would sit down, have a cup of tea and a slice of marmalade or something. Then that would give me just enough energy I could clear up in the kitchen and then have to sit down again. And from then I would go up the stairs. But it got me half, halfway up the stairs, then I had to sit down because I thought me legs wouldn’t carry me.

You were talking about going up the stairs?

Yes, I would go up stairs I got up and, in three, three goes. I’d have to sit down and have a rest. And I could get, get up and off of, off of the bed. I’d make the bed. And then I had to shower while I was upstairs because I knew I’d never get back up, up them again. And that was all I could do. But in between this while I had that ME with it and I didn’t know. So I don’t know what the symptoms first of all, whether they were the ME or the Parkinson’s. Because they both, they sort of both come together.

Well, when I first started taking the tablets it was very good for me really. Because from I couldn’t sort of, couldn’t pick up say that vest, I couldn’t pick that up and fold it, I couldn’t do that. In actual fact it’s just starting to go again. So that’s after all them years. So I’ve got to say after ten years this has just crept back in. So I, when I see him he’ll probably change me tablets. And it was like you’d been born again. That was the feeling you got. It was so nice that you could sort of go upstairs, come down and you could walk out. But you, as I say you can’t walk far because of the muscles. Then, they, they sort of do hurt you. But once I take them tablets, my husband calls them the rocket, once I take the rocket they work wonders.

Yes, I, I did used toget upset, because I knew something was wrong.And when you’re trying to get it through to somebody who tells you there’s nothing wrong with you, then, you, you know, the, the, it is a bit sort of hard.And you feel you want to get up and slosh them one really, you know, sort of.

I told one of me sisters about three years ago, and she told the rest.So obviously it was a shock to them when they knew.But because I had that ME as well, they thought it was just the ME and not, and not with that Parkinson’s.So I suppose, yes, maybe it might have been a bit of a relief.I don’t know.Because in actual fact one of these friends, because we were going away on holiday with them, and I’d been up and seen that consultantin [name of hospital] and he said there was nothing wrong with me, and we’d gone on holiday, because we was away with them.We came back from being out for the day and I sat down and they started.Oh, o I said, My arm is hurting me againI felt like just sitting down.And she said, Now come on, get up.The doctor said there’s nothing wrong with you.So get on with itAnd that would annoy you like, you know.But then you can understand her because he said there was nothing wrong.So, yes, it was quite frustrating really because you can’t do no more and tell them like how you feel and that.