And at what point were you invited to the clinical
trial?

I don’t know,
I can’t really remember it that well bit I think it was about January.

Was it?

Yes.

Was it when you were in hospital?

I don’t know
I think so.

What happened, what did you know about it?

I don’t know
they spoke to my mum and dad quite a lot so I didn’t know what was going on.

Ah okay.

It would be
one day you’re going up this hospital then you’re going up the other so it was
all quite a shock to me.

Was it?

Yes.

Did they talk to you about it about what you were
going to do?

Yes they,
well they did like talk to my mum but they said they’d talk to me more because
I was the one that was actually going through with it, so yes.

Do you remember anything that they told you at the
time when they talked to you?

Not really.

No?

No.

it’s all gone now hasn’t it?

Yes.

it’s in the past.

Yes I kept
having like loads of visitors telling me all this stuff like doctors but I
can’t remember any of it really.

And when you took part in, you say you took part in
a clinical trial, do you know what the trial was about or what the purpose was?

No.

Do you think you would like to have known?

Yes.

Did you think to ask anybody or not at the time?

Not at the
time no.

Why was that?

I don’t know
really, I just didn’t really think about it I just wanted to get like, you
know, get better and that.

And did they, they didn’t mention anything about
this is the end of the trial or not?

Not really
no.

Did you think it’s important that you do know?

Yes.

What would you…

I think they
should, they should have told me that it was the end of it because like because
I wanted to know if I had to go back or anything and like stuff like that like
if I had to go back but yes. I just, I just think they should have told me
before I left but obviously not.

I mean if they could improve, you know, taking on
your experience in to account that you say that at the time you more
importantly wanted to get better. But if they could improve a clinical trial,
for like yourself taking part, how could they improve that? If
you had a message to say to them?

I think that
they could have told me that it was finished like if I needed any improvement
or anything. Wait I think they did tell me that I needed improvement I’m not
quite sure, yes I think, no I don’t think they did. But Iike yes they need to
tell you when like if you’re done, they need to tell you like I can’t really
think I’ve got it in my mind .

Take your time.

They could
tell you that that like, yes that’s it really I think they did everything else
like what they told me, what I think they really need to do is tell you like
that you’ve finished and that.