Devon – Interview 22
Devon was always into music from a young age, but when in a successful reggae band he had a breakdown, was admitted to hospital and diagnosed with paranoid schizophrenia. Music gave him hope, and eventually he founded the highly successful music project ‘Sound Minds in South London
From a very young age, Devon was into music. He went to a comprehensive school and formed a band in assembly. He said his mental health problems started way back’ and were born out of creativity and needing to get his creativity out. He was born in Jamaica and then moved to the UK but things were hard’. After he left school it was hard and he couldn’t find work and was unemployed for many years. He used to look forward to going to the club on a Friday and playing his guitar. He says that his mind wasn’t settled’ and that he wanted his music to be perfect, like chasing the moon.
Devon helped found a band called The Investigators, which had a number one in the reggae charts, but shortly after had a breakdown and went to hospital, so couldn’t continue. However, music gave him hope and was a driving force’ when he was in hospital. Devon was a Rastafarian at one time, and part of the Rastafarian scene. He describes the period before he went into hospital as one of the happiest times of his life. One day his Mum invited him for tea, and he was seen by a doctor and then sectioned by the police. He trusted his Mum and his favourite aunty who was there, and went along with the police. When he was in hospital he thought he was all right but the doctors were asking him if he was hearing voices when he wasn’t. He didn’t know what psychosis was. He asked a night nurse to be released as he felt they had made a mistake, but she alerted the security staff and he was wrestled to the floor and given an injection of a tranquiliser. They accidentally overdosed him and he remained unconscious for four days. The hospital did not tell his parents about the incident. After that they gave him medication which affected him severely, and he was unable to walk, having to move around on all fours. In later years he realised that he was diagnosed as a paranoid schizophrenic, and also realised that he was still grieving over the death of the grandmother who had brought him up in Jamaica.
Devon now sees a positive side to mental illness, and regards it differently from the way he thinks the older generation see it, as violence needing heavy medication. He feels that it can be positive. After a while Devon responded to the medication in hospital and went home to sleep at his mum’s place and attend a day hospital to do art and art therapy, as well as music. He quite liked this, and the community feel. After that when he was getting better he went to a community day centre and also liked this as they were progressing on together’.
Devon then volunteered at a project doing music workshops in schools, and started living in his own flat and going to college. After a while he felt he didn’t need his medication and stopped taking it, but unfortunately got ill again. He went into hospital and responded to medication, although Modecate used to give him severe side effects, such as shuffling and dribbling. After becoming heavily involved in a local church, Devon was approached by senior occupational therapists from the trust that was looking for a space to do music. He knew of a space in the Methodist mission and that was how Sound Minds started. Sound Minds is now a highly successful, influential and innovative user-led music project for people who have experienced mental health problems. He also started to act as an advocate for black and minority ethnic people on wards and helped found Canerows and Plaits, which provides advocacy and care for BME people on mental health wards. Devon now concentrates on music, Sound Minds, acting and advocacy. He puts his recovery down to many things getting involved with the local church, taking medication (Depixol depot injections), being creative, keeping himself healthy, sleeping properly, and eating properly.
Devon also took part in the Healthtalkonline website on Mental health’ Ethnic minorities experiences to visit this website and see more of Devon’s story click here.