Camille

Camille had wanted to breastfeed her baby but was not able to do so due to miscommunication and lack of support in the maternity ward.

Camille was diagnosed with HIV over 20 years ago when the HIV pregnancy and infant feeding guidelines were very different from now. When she had her first child, she was advised to have a cesarean and formula feed. Although she did not breastfeed her older child, she insisted on a vaginal delivery because she knew she had an undetectable viral load. The guidelines nowadays recommend that pregnant women with an undetectable HIV viral load, should have a vaginal delivery.

Her partner is not living with HIV. She has had some difficulty with him sharing her HIV status with others, without her permission.

When she became pregnant with her new baby, she wanted to breastfeed, and she knew that this was an option for her. However, when she gave birth there was a delay in her milk coming, and she was only able to give her baby some of the colostrum (the fluid your breasts produce in the first few days after birth, it is thick and golden in colour). From the maternity ward she had called a support group for breastfeeding support, but it was out of hours so she could not get the support she needed. The staff on the maternity ward advised her to formula feed, which she did. The next day she began producing lots of milk but the maternity staff told her it was too late and she could no longer switch to breastfeeding.

Camille believes that non-HIV specialists should have more training and support to understand infant feeding within the context of HIV.

Camille’s friends protected her when another friend asked why she was not breastfeeding.

Age at interview 44

Age at diagnosis 24

Camille wanted to breastfeed to bond with her baby and provide the best possible nutrition.

Age at interview 44

Age at diagnosis 24

Camille did not have adequate breastfeeding support when her baby was born with jaundice, and the restriction on mixed feeding forced her to switch to formula.

Age at interview 44

Age at diagnosis 24

Camille felt better supported in breastfeeding decisions by her main midwife who had more knowledge about HIV. She thinks other nurses aren’t trained to deal with HIV.

Age at interview 44

Age at diagnosis 24

Camille felt she wasn’t given a choice about whether to take medication to stop her breastmilk.

Age at interview 44

Age at diagnosis 24