Intensive care: Patients' experiences
High Dependency Unit (HDUs)
Some hospitals have High Dependency Units (HDUs), also called step-down, progressive and intermediate care units. HDUs are wards for people who need more intensive observation, treatment and nursing care than is possible in a general ward but slightly less than that given in intensive care. The ratio of nurses to patients may be slightly lower than in intensive care but higher than in most general wards. Some hospitals have a combined ICU and HDU or a certain number of beds in ICU given to HDU patients. In these cases, although a person is not moved to another ward, the level of care is slightly reduced as s/he is no longer in such a critical state. People spend varying lengths of time in HDU, depending on the nature of their illness and the demands on the unit. Some hospitals in the UK have no HDUs, and in these cases people are usually transferred directly from intensive care to a general ward.
- any physical or psychological problems
- the likelihood of any problems developing in the future, and
- their current rehabilitation needs
- If the health check shows that the patient could benefit from more structured support, s/he should be given a more detailed health check (called a comprehensive clinical assessment) to identify their rehabilitation needs."
Here people talk about their experiences of High Dependency Units.
Hospitals use HDUs in different ways. Some people are admitted before and after planned surgery. Many, who are admitted to ICU as emergencies, are moved to HDU immediately after leaving intensive care. For some of them, especially those who'd spent over a week in intensive care, transferring to HDU was a sign of progress. It meant they were improving, gradually establishing more normal eating and sleeping patterns, and a step closer to going home. Some people described the progress they made in terms of their abilities to grip, walk and communicate. Many said they felt much more alert and orientated once they were in HDU. One woman was discharged immediately after being in HDU. She and her partner both noted the progress she made once she was transferred. A few people remembered having physiotherapy in HDU.
Her hallucinations started wearing off in HDU but she felt bored because she was unable to do...
So there was like, long periods of being lucid and watching people and understanding what was going on and I had periods of just like everything just being madness again. But I couldn't like think to myself while I was in the madness, "I'm in madness, this isn't real", it was real to me.
So that was still going on in the High Dependency Unit?
Yeah, at first yeah.
How long were you there?
Ten days, so when did it start kind of...?
It started easing off after, probably after four or five days started to ease off and I started being able to go to sleep. I mean I wasn't sleeping for long because it's just so boring in there. I couldn't move, I couldn't do a single thing, they were still washing me, I wasn't eating anything, I was on a drip for fluids. So basically they were just like washing me and like just leaving me lying on this bed. And they were doing the drugs and all things like that. So I wasn't tired and I was like, I was just watching and watching. And they would say to me of a night, "Go to sleep." But you just can't sleep. I'd sleep like for an hour and then wake up and then I'd be awake at four o'clock waiting for the clock to tick round to eight so they'd change shift and all stuff like that.
She was discharged because she could walk and her partner could look after her at home.
Patient' It was about four, no it was about four or five weeks and then I went to HDU just for a week and then I was discharged from there which I thought, I was a hell of a success story [laughs] because there were concerns, particularly because my mobility still wasn't very good and you know for health and safety reasons the nurses were taking me to the loo and waiting outside and I couldn't
In a wheelchair?
Patient' No I was walking but that was their aim because they thought I was going onto a ward and they were saying your experience on a ward would be, because it was one to one nursing and then it was, I had a nurse, you know a nurse between two of us and they said you know we need to get you up and moving so you can go to the loo unaided and stuff like that. But because of the risk of infection and the fact we had, [my partner] was going to stay at home and we had a downstairs loo, I got discharged quite quickly really.
Partner' Because she'd done everything else sort in of within a week, initially she couldn't lift her glass or a plastic glass, within two days of being in HDU she'd moved onto a China cup and we was, which seems silly little things. But for us they were, you know she was in tears and I was when she was told me "I'm onto a China cup, lifting that and then you know obviously feeding herself and she'd made ten yards across the ward with a Zimmer, ten yards by herself and then to the loo and back. All within a week she said, like she worked so hard, she was having extra physio sessions, she got it back. I mean I came rushing in to see her, she'd say "No the physio is here, you'll have to go and wait for another hour," so I'd go out and wait because that's what she wanted and she was determined to use all the time she could to get out as quickly as she could. So by the time she came home it was just a strength issue really wasn't it?
When people felt they had a high standard of nursing care and treatment in HDU, they regarded their transfer as a positive move in the right direction. Some people, however, felt they'd been transferred much too early. Others had mixed feelings about moving to HDU because they'd felt so 'safe' and secure in intensive care. One woman said ICU was like a 'security blanket' because a nurse was by each patient's side almost all of the time. Some felt anxious as they were improving and found it difficult to cope with other sick patients in close proximity.
He was transferred to HDU after doctors removed his tracheostomy and he gradually started...
He was moved back to HDU on several occasions because of a recurring infection.
Was I glad to move out of Progressive Care Unit into general ward? No. I knew that the level of care was going to be different. And having experienced Progressive Care Unit, then general ward and back to Progressive Care, general ward, back to Progressive Care Unit, I knew where my real comfort zone was.
She had vague memories of her first time in HDU and found it seemed more crowded the second time...
And how long were you in the Intensive Care Unit?
I think about a fortnight.
And then I went to HDU, which I didn't remember from the time before. I didn't like HDU at all because it's very, very crowded in there. There's too many beds and you felt like you could reach out and hold hands with the person in the next bed. But luckily I was only there from about 6 in the morning until 6 at teatime, and I was moved back onto the ward that I'd started out on.
So you were only there for a day?
I was only there for a day, yes.
One woman was unhappy with some of the nursing care she'd had in intensive care and said she was angry when she went to HDU. She felt isolated and that nurses didn't believe what she was saying.
She found the nursing care she received one of the most upsetting parts of her hospital experience.
And at the end of the bed you had the usual sort of table, which comes over the top of the bed, and this was full of stuff. And she said, "Do you mind, you know, I'm not supposed to do this, but do you mind if I put this file or this folder?" She said, "I know I'm not supposed to do that, not supposed to put it on the patient's, end of the patient's bed. But if you don't mind." I said, "No, no, no, that's fine. You go ahead." So perched on the slightly sort of wide-ish end to my special electric bed was this blue folder, hardback folder, a ring binder is probably really what it was. And then she sat down on the side of the bed and started talking to me. And I got to the bit with her where I said, "One of the things that I really, really found annoying, that really caused me distress was, if I said something, that I wasn't believed. I said, "It's like saying to you, if I say this to you right now, your folder has fallen off the end of my bed on to my feet, and it's quite sore." And she went, "Yes, right." And I said, "Your folder has fallen off the end of the bed. And it's quite sore. It's on top of my feet." And she still looked at me, and I said, "Do you see what I mean? You would now, you don't believe me. But if you turn your head and look round you'll see what I'm telling you is the truth." And that's how far I had to go, that I was being interviewed to my experiences of being in Intensive Care. This was the one thing that really upset me the most. And I was still having the same problem.
And she looked at me, she went completely red, as she should have done. And she said, "I am so sorry." I said, "I'm sure you are now but I've demonstrated to you what I've gone through. And even you, tell me, even you didn't think you'd do that, did you?"
When hospitals don't have HDUs, patients are transferred directly from ICU to a general ward. Some people who had experienced this expressed their concerns (see 'The general ward: care and environment').
He felt that being in HDU could have prevented mistakes made on the ward because of poor...
Wife: But I understand that the particular hospital that [my husband] went to, they're going to try and put in a High Dependency unit, which, it will be a better transition from Intensive Care to go to a High Dependency Unit, and then go on to the ward. Because it's just like being cast off in a boat. You have this wonderful one-to-one standard of excellence and you go, and next thing you're literally fending for yourself and you're on your own. And for anyone sort of, you know, finding out about what the operation entails, and what the facilities are going to be for them, I would think it would be quite frightening.
HDU would have been better for her husband who was still very confused and weak after being in ICU.
Sadly the hospital he was in, excellent as the Intensive Care Unit was, hasn't got a High Dependency Unit. And the gulf between the nursing that he did have in the ICU and then that he subsequently had on this trauma ward was just enormous, and frankly not acceptable. Because he was still very confused. And I accompanied him to the trauma ward and it was about an hour and a quarter before a nurse came and introduced herself. It was a 6-bedded or 8-bedded ward, I can't remember, with a very challenging patient in the bed immediately next to [my husband]. A chap who clearly had a drug problem and who was behaving in a very, he was acting out quite a lot. And [my husband] was lying there totally confused and, you know, bemused by the whole thing and had no, had I not been there, wouldn't have any idea how to summon any help whatsoever. No one showed him how to use the buzzer. There was no water. So I had to be very proactive. And in fact about an hour after he'd been there was so upset about this that I marched back into the Intensive Care Unit and saw the consultant, who, you know, immediately agreed that it was not satisfactory and that this was a problem they had every time that they had to discharge somebody from the Intensive Care unit. But for some reason this wasn't a target in this health authority, although they recognised that an HDU was absolutely crucial.
So [your husband] had to continue staying in the trauma ward?
Yes. What they did do was, they have an outreach team, which is frankly not very adequate. But, you know, so once a day the outreach team would come and see him to check that, how he was getting on. It was the best they could do clearly, but certainly didn't take the place of a High Dependency Unit, which is where he should have been.
What did the outreach team actually do? Was it just a conversation?
A conversation basically, and just sort of I suppose monitoring that he was, you know, having his, you know, the right sort of checks being, sort of being made by the nursing staff. The nurse who was in charge of him was also challenged by, you know, linguistic abilities. She was very caring but her English wasn't excellent. So all in all that wasn't ideal.
Some people recalled being visited by outreach nurses. Outreach services aim to enhance the care of ICU patients on the wards and make the transition easier. Outreach nurses also aim to avert re-admissions to ICU from the wards and to share their nursing skills with other staff in the hospital.
She recalled talking to an outreach nurse about transferring to a ward and valued her support...
Yes. What was particularly good with the outreach?
Well I just, I think they were very good at handholding almost, a they came and they were very efficient. There was a team of three of them and they started to come and see you in step down and then they came to see you every day until I had my trache out, which I think was about two weeks. So they would just monitor you and kind of, but they were very direct at talking to me and I felt, whereas the doctors generally didn't talk directly to me. They kind of talked to each other and would kind of shuffle on, whereas the nurses were very good at talking directly to me. And I think, and you could just see them working with other people as well. They were very efficient and it was sort of, they were there for when they needed to be there and then they weren't.
Last reviewed August 2018.
Last updated November 2012.