Symptoms of heart failure: oedema, palpitations and wakefulness
The other main symptoms of heart failure include feeling congested or full of fluid (oedema), having an irregular heartbeat, finding it difficult to sleep at night, having a small appetite and poor circulation. As with symptoms of breathlessness and tiredness, these symptoms are not specific to heart failure and can also occur in other medical conditions (see 'Feeling breathless and tired'). Medication will usually help to relieve the symptoms described here.
Oedema or swelling of the ankles and feet is a common symptom of heart failure. Other parts of the body such as the abdomen may also get a build-up of fluid, though most people said that medication helped to alleviate the problem. Some people with more serious heart failure described how fluid could build up in the lungs. One woman said that at one stage before starting medication she had felt as though she was almost drowning in her own body but that she had responded to drugs and treatment.
She describes how it felt when she had oedema that led to a cardiac arrest.
Any prolonged irregular heart rhythm ('arrhythmia') may indicate the presence of heart disease; one man who had experienced palpitations as a child said that since starting treatment his palpitations didn't worry him as much and that he now knew what kinds of things caused them. Someone else said she had noticed that her palpitations happened at the same time as chest and stomach pains.
He describes the kind of things that make him have palpitations.
And so, it does occasionally, if I get stressed up or somebody irritates me I can feel it going, I can feel wonky behaviour coming on with the heart. And I would also say that, you know if one is discomforted, you know, if it's a very hot day and you're having to stand in the tube train or something (which God forbid one doesn't have to do anymore now) but you would notice it then. The rest of the time I just ignore it. Sometimes you feel it and think wow, and I sort of quickly go like that and say 'Yes, it's still beating, yes!' But it is actually quite irregular.
She experienced palpitations at the same time as pain in her arms and chest. (Video and audio clips in Punjabi, text in English.)
Lots of palpitations and pain, pain here in my chest and stomach, pain in my arms and palpitations. They then got me into a bed. I don't know exactly what tests they did but after staying in hospital I did improve. After staying in hospital I did feel better.
They didn't give you an operation though?
No, no operation.
Yes, they checked me over completely and gave me medications, and with them I'm fine.
Did that all take place two years ago?
Yes, two years ago. About one-and-a-half years ago. Well the problem was going on and really looked into about two years ago. Before that the doctors kept telling me it was acid indigestion but they didn't really know what it was. Then there was that main problem, when I went into hospital and they did all the tests. But I hadn't had any major problem in terms of my heart. I was okay.
Difficulty sleeping through the night from time to time was a common experience, though others said they had always slept very well. Sometimes people had woken themselves up coughing but said that this had been put right when their medication was changed. Others described how they slept for 3 or 4 hours at a time during the night. Waking up during the night was acceptable to some, but one man said he missed getting a full night's sleep. Nurses had often advised people to go to sleep propped up with pillows; some had found this helpful and others said that they slipped down the bed during the night.
If he lies flat he wakes up early and coughs.
Several people talked about their poor circulation; one man mentioned having very cold feet and shins and another said his feet were too hot at night. Someone else said that his skin had become flaky because his circulation was so poor.
Feeling uncomfortably full after eating small amounts of food was also something people noticed though not everyone associated it with heart failure. Some said they had smaller appetites than before and had put it down to their medication (see 'Common side effects of heart failure medication').
He felt bloated after eating small amounts of food.
It felt as if the slightest, anything you ate, it could be half a bar of chocolate, an apple, it just felt that your stomach was full, and that was the fluid developing on the stomach because of the heart's apparently working too hard, and the fluid couldn't get out. Right so the heart was creating too much fluid on the lungs, that's it, water on the lungs, that's what they call it.
For more information on heart failure see the British Heart Foundations website, it has a number of useful publications including ‘Living with heart failure’ and ‘An everyday guide to living with heart failure’ which explain heart failure in more detail.
Last reviewed April 2016.
Last updated April 2016.