Who made this patient and public involvement in research resource?

Louise Locock

Louise has a PhD in social policy from LSE (1998) and joined the Health Experiences Research Group, Department of Primary Health Care, University of Oxford in 2003. She is now Director of Applied Research for the group. Louise is also Health Experiences Fellow for the National Institute for Health Research Biomedical Research Centre in Oxford. Her research interests include experiences neurological conditions, medical research participation, patient and public involvement, and how patient experience can inform NHS service improvement.

Anne-Marie Boylan

Anne-Marie is a Qualitative Researcher in the Health Experiences Research Group, University of Oxford. Her background is in psychology and she obtained her PhD from Queen’s University Belfast. Her research interests include patient and public involvement, experiences of acquired disability, brain injury and children’s research.

Áine Kelly

Áine holds the Ann McPherson Fellowship and is the Research Assistant to the Health Experiences Research Group. She conducted her MSc in Health Psychology at the University of Surrey and is about to undertake her DPhil at the University of Oxford. She is interested in the health and wellbeing of looked after children and young people.

Joanna Crocker

Joanna is a Research Fellow at the Health Experiences Institute, University of Oxford, and is funded by the NIHR Oxford Biomedical Research Centre. With experience in basic science, quantitative and qualitative research, she is particularly interested in research methodology. Her current work focuses on assessing the impact of patient and public involvement in research.

Conrad Keating

Conrad is the Writer-Residence at the Wellcome Unit for the History of Medicine at the University of Oxford. He is the author of ‘Smoking Kills: The Revolutionary Life of Richard Doll’. His most recent publication in the widely acclaimed Great Medical Discoveries: An Oxford Story, which accompanied the exhibition ‘Great Medical Discoveries: 800 Years of Oxford Innovation’ which he curated for the Bodleian Library.

Advisory Panel

Jennifer Bostock
Lay representative

Karan Harris
Lay representative

Michael Hocken
Lay representative

Fraser Old
Lay representative

Joanna Crocker
Oxford Biomedical Research Centre Fellow, University of Oxford

Sally Crowe
Director, Crowe Associates Ltd

Simon Denegri
Chair of INVOLVE and National Director for Public Participation and Engagement in Research, National Institute for Health Research

Alison Ford
Senior Programme Manager, National Institute for Health Research, University of Southampton

Kath Maguire
Associate Research Fellow in Patient and Public Engagement, University of Exeter Medical School

Christopher McKevitt
Reader in Social Science and Health, Division of Health and Social Care Research, School of Medicine, King’s College London

Alison Monk
Communications and Public Involvement Officer, NIHR Clinical Research Network: Thames Valley and South Midlands

Norma Morris
Honorary Research Associate, Institutional Research Information Service, University College London

Sophie Petit-Zeman
Director of Patient Involvement, NIHR Oxford Biomedical Research Centre

Helen Salisbury
GP and Research Advisor, Health Experiences Research Group, University of Oxford

Rosamund Snow
Researcher – PPI in Medical Education, University of Oxford

Sophie Stanisewska
Senior Research Fellow in Patient and Public Involvement and Patient Experiences, RCN Research Institute, Warwick Medical School

Mark Taylor
Central Commissioning Facility, National Institute for Health Research/Oxford Biomedical Research Centre

Richard Thompson
Professor of Epidemiology and Public Health, Institute of Health and Society, Newcastle University

Sonia Vougioukalou
Public Engagement Associate, Elizabeth Blackwell Institute for Health Research, University of Bristol


We would like to thank everyone who participated in this research for donating their time and experiences. We are grateful to everyone who supported this study, all those who helped with recruitment. We are especially grateful to Rosamund Snow.

The NIHR Biomedical Research Centre Oxford is a partnership between the University of Oxford and Oxford University Hospitals, funded by the National Institute for Health Research (NIHR).

Supported by:
National Institute for Health Research (NIHR) through the NIHR Oxford Biomedical Research Centre. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health.