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Carolyn started doing patient and public involvement about 10 years ago after being diagnosed with breast cancer. Recent recurrences have kept her in touch with patient concerns and treatment developments. She initially worked to improve service provision before moving into working on health research.
Carolyn has four children, including two step-children, aged 25, 26, 32 and 35. She worked in careers psychology and has retired from her job as Director of Career Development at...
Mary has been involved in PPI for about 20 years. She mainly works in mental health research with local, national and international groups.
Mary used to work in marketing before moving into the civil service. She currently works as a mental health service user consultant. Ethnic background: White British European.
Tom became a consumer representative and started doing PPI about fifteen years ago. He works with numerous organisations, committees and groups in both health and medical research, and service delivery. His main research interest is in lung cancer, but he also contributes to research in other types of cancer.
Tom lives with his wife. He is retired but formerly worked as an electrical engineers. Ethnic background: White Scottish.
Maggie has been a patient advocate in research for about 12 years. She got involved in health and medical research after she was diagnosed with breast cancer.
Maggie is retired, but worked as a health visitor for most of her career. Her daughter died of Reyes Syndrome when she was two years old. Ethnic background: White English.
Richard has been a patient and public representative for about 13 years. He got involved after being diagnosed with cancer. During treatment, he kept a diary that was passed from the health professionals and researchers treating him to the chief executive of a national cancer charity, who invited him to help with some research about information-seeking habits of patients.
Richard is single and formerly worked as a senior manager in local government before giving up work to do patient and public involvement. Ethnic background: White British.
Janice initially became involved in PPI by joining an ethics committee as a lay member. She later went on to become chair of the committee.
Janice is married with one grown-up child, and a grandchild. She is a retired college lecturer. Ethnic background: White/British.
Roger has been involved in health and medical research in sarcoma since he became a patient advocate in 2002. He also founded Sarcoma UK, a national charity that aims to provide information and support for patients with the condition, and raises funds for research.
Roger is married and has three daughters, aged 37, 35 and 28, and four grandsons. He is a former television producer and journalist, and has worked as a consultant with...
Derek has been a patient PPI representative in health research for about 13 years. He got involved after recovering from throat cancer.
Derek is married. He used to work as a teacher before becoming a freelance public and patient involvement (PPI) training facilitator. Ethnic background: White/Scottish.
Maxine has been involved in PPI in health research for about 15 years. She has been involved in various aspects of PPI, including a Cochrane review on vitiligo on which she is the lead author.
Maxine is a retired academic librarian. She is married with two children, aged 48 and 42, and has two grandchildren. Ethnic background: Jamaican/British.
After having a heart operation, Francesco decided to give up his job. There is a history of heart problems in his family, so he wanted to do things he was passionate about while he still could. He has been a patient and public representative in health research for about 11 years.
Francesco is married with two children, aged 21 and 18. He is retired, but previously worked as a manager of a residential children’s home. Ethnic background: Italian.
