Here, you can find any of the interviews on this site.
Marcelin was diagnosed over three years ago (in 2003), after several years of weakness in his arms, and later his legs. He now uses a wheelchair. His speech is unaffected. He continues to work full-time. (Partner Tess also interviewed, MND44).
Marcelin is a research and technology systems engineer, divorced, with 4 children aged 27, 20, 16 and 7. Ethnic background/nationality: African.
Penny was diagnosed three years ago (2003) with ALS, after having arm weakness, pains and coughing fits for three years. The condition has progressed quite slowly so far.
Penny is a retired primary school headteacher, married with 2 adult children. Ethnic background/nationality: White British.
Slawomir was diagnosed 3 months ago, 18 months after first noticing weakness in his leg. He wonders if he may in fact have Lyme Disease. He can still walk and drive.
Slawomir is a company director, divorced with 1 son aged 16. Ethnic background/nationality: Polish.
Sandy was diagnosed 5 years ago (2002) after noticing weakness in one arm. His arms have been worst affected, and now his speech and neck muscles are deteriorating, but he can still walk well.
Sandy is a retired Royal Navy sub-mariner, married with 2 adult children. Ethnic background/nationality: White British.
Peter was diagnosed three years ago (2004). Symptoms started in his arms and hands, and progressed to his legs. He now uses a wheelchair full-time.
Peter is a retired civil servant, married. Ethnic background/nationality: White British (Polish origin).
