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Helen's late husband, Ivor was diagnosed with Factor XI Deficiency in 1995, which explained why he had always bruised and bled easily. In 2002, Ivor died from a stroke two days after a minor operation in which he agreed to try a new clotting agent.
Helen is the widow of Ivor. Helen and Ivor had two children, Ruth (an IT consultant, aged 55) and Colin (an accountant, aged 51). Ethnic background/nationality: British/Jewish
Deborah was diagnosed with a Factor XI Deficiency of less than 1%, aged 45. She has fresh frozen plasma before, during and after any surgery. Her younger son was also found to have a deficiency of less than 1%.
Deborah is a retired secretary/foreign correspondent and translator. She is married with two children. Ethnic background/nationality: Jewish English
Stewart was diagnosed with Factor XI Deficiency after falling seriously ill as a result of a liver biopsy.
Stewart and Marilyn are married and have two grown up children. Stewart worked as a taxi driver and Marilyn is a care worker. Ethnic background/ nationality: Jewish
