Keeping a diary
Intensive care patients often remember little of their ICU stay because they are usually sedated in the earlier stages of their illness while they receive...
Sources of support in ICU
Everyone deals with differently with crisis and uncertainty and will have different and changing needs for support. Here people talk about the support they received or would have liked when someone close to them was ill in intensive care.
Relatives and close friends had received support from various sources, including family, friends, neighbours and health professionals, and had valued different kinds of support during this extremely distressing, uncertain time, including help with looking after homes, young children and pets.
Many people said they’d received a lot of support from family, and some said different relatives supported them in different ways. One woman said her eldest sister had supported the whole family emotionally as well as taking care of many practical matters, such as looking after her ill sister’s home while she’d been in hospital. Some people with young children praised the support they’d received from their mothers, who’d looked after their children, often moving into their homes so they could visit ICU every day. One woman said she’d had support from two families when her partner had been critically ill – her own and her partner’s grown-up children. Several mentioned they’d grown closer to family members and partners because they’d spent so much time together, sharing the highs and supporting one another through the lows.
Her husband was very supportive when her mother was ill and they grew closer as a result.
Many people said support from family had been crucial during this time. One woman explained how she’d asked relatives to be positive while her son was critically ill and to send him their positive thoughts and energy. Those who’d had large or extended families said they’d supported one another and ensured someone had always been at the patient’s bedside.
Some people said they’d received a lot of support from grown-up children. One 79-year-old man said that, when his wife had been critically ill, his daughter had taken time off work and travelled some distance to where he lived to look after him and his home so he could focus on visiting his wife. Another said his daughters cooked a meal for him every evening so that he didn’t have to worry about cooking when he came back from the hospital. Although he hadn’t always felt hungry, they made sure he ate and looked after himself.
One woman said she and her sister stayed overnight in hospital throughout the time her husband was in ICU. Every evening her brother-law had brought her and her sister a cooked meal. Many said they valued support from family and had wanted to be mostly with their families at this difficult time, rather than with friends. One woman said that, although her relatives had lived some distance away, they’d always been there for her had she needed support. However, she often wanted to have peace and quiet.
Her family phoned her every night and was supportive, though she also valued some quiet time…
For some people friends had been particularly helpful, understanding and supportive and some said it was at this difficult time that they learnt who their true friends were. One woman said that, when her sister was in ICU, one of her sister’s friends became ‘like family’ for a while as she’d become so involved in helping and supporting everyone.
Her sister’s friend sometimes drove people to the hospital, looked after her sister’s home and…
Another woman recalled how one of her close friends had taken a week off work to be with her while her partner was in ICU, even though she was self-employed and wouldn’t get paid for that week. Others said friends helped by cooking meals, looking after their home and providing emotional support. One woman said she’d received a lot of emotional support from a friend who’d recently been ill herself. Another said a good friend had offered to cook and do her washing and made sure she didn’t have to keep repeating news of her partner’s illness by updating other friends. Several praised the support they’d received from friends who’d left meals for them, often on the doorstep, for when they’d returned from a busy, exhausting day at the hospital. One woman said she’d received a lot of support from her sister-law’s friends when her sister-law had been ill in ICU, even though she hadn’t known or met them before.
Some people praised the support they’d received from neighbours. Several explained how neighbours had cooked for them, looked after their pets or homes, or helped by doing the shopping.
Her neighbours gave her lifts to the hospital and took it in turns to cook for her so shed have…
Some said health professionals had been very supportive, especially ICU nurses. Several praised nurses who’d shown an interest in them as well as the patient (see ‘Nursing care’). One woman praised the support she’d received from an osteopath, who’d massaged her husband when he’d been critically ill, and she felt this had helped his recovery. Several said relatives or friends who’d worked in the health field had been able to provide both information and support.
Some people said they’d received support from other visitors in intensive care, who they’d often met in the ICU relatives’ room (see ‘The relatives’ room‘ and ‘Overnight accommodation‘). One man said he’d received information and support from a couple who’d been through something similar themselves, and this had been extremely helpful. A few said they would have liked to speak to other people who had experienced what they’d been through.
They would have liked to speak to people further along the road to recovery than their son was…
At this difficult time most people said they’d valued the practical support they’d received from family, friends and neighbours as much as the emotional. This included help with looking after their home, pets, young children, lifts to the hospital, gardening, shopping and cooking meals. Many had been struck by how understanding employers had been during this time, and the support they’d received from colleagues who’d sent cards and other messages of good-will (see ‘Impact on work and finances‘).
For many, a great source of comfort, support and hope had been their religion, spirituality or faith in God. Some people said that, when they hadn’t been sitting at the patient’s bedside, they’d been in the hospital chapel. Several had visited the chapel every day and lit candles. Many said they’d prayed the ill person would survive and be able to lead a full life again. A few had spoken with hospital chaplains and received comfort and support from them.
At this desperate, uncertain time he prayed his partner’s mother would recover and found it…
Many said that sitting in the chapel, often alone and in silence, had been comforting. Some said their faith had helped them through an extremely difficult time and to accept what had happened. Others said friends from their church had visited the patient in ICU and prayed for them. Many said friends, relatives and other people, often from across the world, had prayed the patient would recover and felt these prayers had had a positive effect on the patient.
He spent many hours in the hospital chapel and valued the peace, quiet and solitude.
Many people said that, although they hadn’t considered themselves to be religious, during this traumatic, uncertain time, they’d prayed in desperation and hoped their prayers would be answered.
She did everything she could in the hope her husband would recover, including praying and making…
One woman said her husband’s critical illness had made her question her lack of faith.
She still couldn’t decide whether she believed in God but appreciated the support she and her…
Some people said they hadn’t always received the support they’d wanted and that some friends and family had been more supportive than others. A few said they’d wanted to deal with the patient’s illness in their own ways and hadn’t wanted to talk to other people. They’d often withdrawn from the support they’d been offered by friends and relatives because they’d needed to be alone. One man, an ICU consultant, said that, although he hadn’t needed support because he’d been familiar with the ICU environment and treatments, he’d supported his mother who’d found it extremely difficult when his father was critically ill. Another said man received had very little support when his wife was ill but his neighbours occasionally walked his dogs if he’d been unable to.
A few people said they would have valued having some counselling when the patient had been in ICU, if it had been available. Many others, however, felt they wouldn’t have been able to think about anything else at the time, though some did have counselling after the ill person had come back home. Some also said they’d joined support groups then, but hadn’t been able to think about these while the patient had still been in ICU.
Waiting for news
Waiting anxiously for news of a patient's condition is a common experience for friends and relatives in intensive care. Here relatives, partners and close friends...