Any side effects, any negative effects that they’ve had on antibiotics?

No, not really. When they were younger, it might make their nappies a bit more runny but it’s not it’s not that severe. Yeah, you’d barely notice it really.

Okay. So they’ve tolerated it well from that point of view.

Yeah, they’re, it’s quite a good refined drug isn’t it. I think. It’s only a five-day-dose as well, that they get routinely, yeah.

Yes, we have had some instance of affecting the diarrhoea and if you query that with the GP they still are quite keen for you to continue taking them and not to change the antibiotics. So that is quite hard to deal with when you’re constantly having to take something that, you know is having that reaction.

Yeah

But from what I’ve been told from GPs the antibiotic is still taking effect and doing what it should be doing and that is a side-effect, not an allergic reaction.

The other thing that I’m aware of in Daniel is that I do believe that antibiotics have perhaps led to him developing lactose intolerance. He has been diagnosed with lactose intolerance which he didn’t have until he was about 9. There is a link between the commensal bacteria that live in your gut and things like lactose intolerance. However I feel if he hadn’t been given those antibiotics in the past for his ear problems and for his chest problems he would have been significantly more unwell, and that’s more of a risk than being lactose intolerant for example.

However overusing antibiotics can lead to digestive problems, diarrhoea because it not only do the bad bacteria you know become affected by the antibiotics, also your commensal bacteria do as well which obviously isn’t ideal, so I have been, I have thought a lot in the past about whether long term use of antibiotics might lead to some kind of problem in the future, you know digestive problems for example in the future. But then you think in the here and now if I say that we don’t use the antibiotics, is that going to lead to you know a more serious chest problem? Is that going to lead to becoming significantly more unwell? It is a difficult decision to make. I feel very much led by the GP. If my GP is saying I want to prescribe them then he must feel it’s necessary. I know GPs are encouraged strongly not to give antibiotics unless absolutely necessary so if he’s recommending it he must feel that it’s necessary.

And does he get any bad, has he ever had any bad reaction to the antibiotic?

No, no.

So he tolerates it?

The only thing we’ve noticed as we say he had periods of diarrhoea and stomach pain when he was about 8 and they diagnosed lactose intolerance.

Yes.

Now we don’t’ know whether the lactose intolerance was caused by an episode of gastroenteritis, because having stomach pain and diarrhoea could be gastroenteritis, and that that’s led to the lactose intolerance. Or whether the use of antibiotics over the 8 years of his life at that point had caused the lactose Intolerance.

Yes.

We don’t know.

I: Yeah, yeah.

All I know he wasn’t lactose intolerant up until that point.

Have you raised this with the doctor, this?

We, well they sent us to get the diagnosis of lactose intolerance we had to go and see a paediatrician again at the hospital. I think I did discuss it with them, but the answer was they didn’t know.

Right.

We don’t know the cause, all we know is he has lactose intolerance. And then they sent us to see a dietician who gave advice about diet.

I suppose in a way if the lactose intolerance has been caused by antibiotic use I think it’s a small price to pay for having a child who is otherwise okay, and hasn’t had you know a really, a bout of pneumonia that’s cause him to you know to get to the point you know, children do die of, of things like pneumonia and chest infections. You know so if we hadn’t used antibiotics in the past you wonder what could have happened. So I suppose lactose intolerance although it’s a bit irritating, it’s not the worst consequence that could have happened.

Any side effects of the antibiotics?

Bit of an upset tummy. But some were better than others. As I say, the one that we ended up with, which I think was amoxicillin, she was okay with that. Other ones made her quite unwell, but that one seemed to be okay.

When she was taking a lot of antibiotics we were prescribed by a dietician some probiotics, which made a massive difference to her health. And also, I don’t know if it was coincidence or not, but it seemed to stop the, the constant vomiting that she had as well. And I do wonder if there was a link between her vomiting an awful lot and the fact that she took a lot of antibiotics. So we were well aware of the fact that they were doing very vital work, but also not so good for her general health. And our hearts always used to sink a little bit when we knew she’d have to go on a course of antibiotics, because it just, you could see, it was not great for her. But she needed it.

You said that the probiotics were a massive help. In which way?

She just stopped being sick. We didn’t start taking them until she was about 12 months old, I think. And she’d been, just been sick every day. As if she had food poisoning or something. Since she was born, more or less. And as soon as she started taking the probiotics, that really calmed down. So, but it may have been coincidence, because it took her a long time to learn to sit up, as well. And it could all have just been connected with the fact that she had very low muscle tone, and those kinds of things as well.

And how were you giving the probiotics?

We would, we had capsules. So we’d break them apart and sprinkle them in yoghurt, and just feed them to her on a spoon.

Okay. Do you still use them?

No.

Have they given him antibiotics?

He’s, he’s allergic with amoxycillin so they have something else they give to me to give him. So it’s not like normal antibiotic because he is allergic with amoxycillin so they have, they give him another things. So it takes time to recover.

How did they find out that he is allergic to amoxycillin?

Yeah. He was one day, he was sick, high fever and, and I take him to GP. GP give him injection. When he give him injection after 20 minutes he become to swollen. You know, everywhere, everywhere so the GP tell me, You have to take him to the hospital. So I take him to the hospital. He is sleeping to the hospital that two, three nights he was sleep there. I think.

And what happened at the hospital?

I think they take, yeah they take some tests and they say he was allergic with amoxycillin.

Ok.

Yeah so that time they, they write to the computer his, in history they say he can’t have amoxycillin.

So the GP gave him the antibiotics because he had a chest infection?

Yes, yes that, yeah.