Profiles

Here, you can find any of the interviews on this site.



Interview 17

After birth of first child she had 3 miscarriages. 4th pregnancy did not 'feel right'. Nuchal scan arranged privately, baby was small for dates. Had two more scans to investigate baby's size and due date. Specialist scan at 21 weeks, then heart scan and then amniocentesis. Doctors suspected diaphragmatic hernia but amnio identified chromosomal abnormality (Wolf Hirschhorn syndrome). Pregnancy was ended by feticide and induction at 24 weeks. (Since the interview she has had another baby.)

  • Background

    Pregnancy ended in 2003. No. of children at time of interview’ 1 + [1]. Age of other child’ 4. Occupations Mother – nurse, Father – lecturer. Marital status married. Ethnic...

  • Age at interview 39
  • Sex/Gender Female

    • Interview 02

    Her 1st pregnancy. Spina bifida detected by AFP test and scan at 16 weeks. She and partner decided to seek second opinion privately which confirmed diagnosis of spina bifida. Pregnancy ended by induction at 17 weeks, followed by post mortem. Mother has epilepsy and took extra folic acid during pregnancy. Since interview she has had another baby.

  • Background

    Pregnancy ended 2003. No of children’ [1]+ 1 baby born since interview. Occupations Mother – translator, Father – film editor. Marital status lives with partner. Ethnic background’ White Italian.

  • Age at interview 39
  • Sex/Gender Female

    • Interview 06

    Their 2nd pregnancy' 20-week scan showed baby seemed small for his dates. Further specialist scans at 28 and 32 weeks showed baby's head was small. Mother also had amniocentesis and MRI scan. Baby diagnosed with microcephaly. Pregnancy ended at 34 weeks by feticide and induction.

  • Background

    Pregnancy ended in 2003. No of children 1 + [1]. Age of other child at interview’ 4. Occupations Mother – mother and housewife, Father – policeman. Marital status married. Ethnic...

  • Age at interview 29
  • Sex/Gender Male

    • Interview 11

    Her 1st pregnancy' experienced hyperemesis during pregnancy. Triple test at 16 weeks showed high AFP reading. Sent for specialist scan which found baby had neural tube defect confirmed by amniocentesis. Pregnancy was ended by induction at 21 weeks. Post mortem indicated Arnold-Chiari malformation. Since termination she has had another baby.

  • Background

    Pregnancy ended in 2003. No of children 2 + [1]. Age of other childen at interview’ 4 months + baby born since interview. Occupations Mother- export administrator, Father- IT service...

  • Age at interview 32
  • Sex/Gender Female

    • Interview 12

    Her 1st pregnancy' 20-week scan indicated anomalies. Detailed scanning showed the baby had severe form of spina bifida. The pregnancy ended by induction at 20 weeks. She has polycystic ovarian syndrome and was taking folic acid before the pregnancy, she now takes a larger dose. One miscarriage since the termination.

  • Background

    Pregnancy ended in 2003. No. of children’ [1]. Occupations Mother – social services manager, Father – music producer. Marital status long-term partnership. Ethnic background’ White British.

  • Age at interview 25
  • Sex/Gender Female

    • Interview 13

    Her 1st pregnancy' heavy bleeding in first trimester caused by ovarian haematoma. 20-week scan found insufficient amniotic fluid - possible premature rupture of membranes. Parents advised that baby could have lung damage/ breathing difficulties - uncertain prognosis. Pregnancy ended by induction at 23 weeks. Post mortem indicated that baby's development not affected by rupture of membranes. Twins born since termination.

  • Background

    Pregnancy ended in 2003. No of children’ [1] at time of interview, twins born since interview. Occupations Mother – programme manager, Father – senior change manager. Marital status married. Ethnic...

  • Age at interview 34
  • Sex/Gender Female

    • Interview 14

    Her 2nd pregnancy' nuchal scan arranged privately - showed baby was small, scan and blood tests found anomalies. Triple test - no problems found. Detailed scan and amniocentesis done together. Scan detected exomphalos. Amnio identified Edwards syndrome. Pregnancy ended by induction at 20 weeks. She has had another baby since termination.

  • Background

    Pregnancy ended in 2003. No of children at interview’ 2 + [1]. Ages of other children at interview’ 4, 2 months. Occupations Mother – formerly local government officer, Father –...

  • Age at interview 37
  • Sex/Gender Female

    • Interview 34

    His wife's 1st pregnancy' 12-week scan no problems detected. 20-week scan detected several anomalies. Specialist scan identified problems with brain development, later diagnosed as Dandy-Walker malfunction. Amniocentesis ruled out Edwards syndrome. Specialist cardiac scan detected heart abnormalities. Pregnancy ended by feticide and induction at 22 weeks. Post mortem identified multiple abnormalities. He and his wife are hoping for another baby.

  • Background

    Interview with man. Pregnancy ended in 2004. No. of children at time of interview’ [1]. Occupations Father – graphic designer, Mother – teacher. Marital status married. Ethnic background’ White British.

  • Age at interview 32
  • Sex/Gender Male

    • Interview 35

    Father of 1 child. 2nd pregnancy' wife felt unwell throughout pregnancy. Nuchal scan at 12-weeks arranged privately, advised to have CVS - no problems detected. 20-week scan found baby had heart problems. Specialist cardiac scan confirmed baby had multiple problems in heart, stomach and spleen. Pregnancy ended by feticide and induction at 22 weeks. Post mortem confirmed multiple abnormalities. He is undecided about whether he wants another baby.

  • Background

    Pregnancy ended in 2003. No. of children at time of interview’ 1 + [1]. Age of other child’ 3. Occupations Father – business analyst, Mother – training and development. Marital...

  • Age at interview 38
  • Sex/Gender Male

    • Interview 38

    Mother of 1 child, married to her first cousin. 2nd pregnancy' 12-week scan normal. 20-week scan detected anomalies in the baby's brain. Specialist scan confirmed multiple abnormalities. Pregnancy ended at 20 weeks by induction. Post mortem indicated baby had proliferative vasculopathy with hydrocephaly (Fowler syndrome). Sent for genetic counselling, established she and her husband carriers of gene responsible for syndrome. She was pregnant at time of interview.

  • Background

    Pregnancy ended in 2004. No. of children at time of interview’ 1. Age of other child’ 2. Occupations Mother – mother, Father – factory worker. Marital status married. Ethnic background’...

  • Age at interview 22
  • Sex/Gender Female