Testing for Covid
This section explores people’s experience of testing for Covid. The topics in this section are: Reasons for testing Access to testing Avoiding testing The people...
In this section we explore people’s experiences of telling other people when they found out they had caught Covid. People we spoke to had a range of feelings about telling others. Most felt they had a responsibility to tell people they had recently seen. People sometimes said they felt guilty about being a source of spread, but they also talked about the government’s responsibilities to keep down infection rates.
We also talked with people who had decided not to tell many others. Although reactions were often very sympathetic some felt that they were stigmatised for having Covid. The topics in this section are:
People we spoke with often told other people when they found out or suspected that they had Covid. Sarita described feeling a responsibility to tell others. Tony Z said, ‘If you’ve got a conscience and you’re not feeling well and you’ve tested positive, you have to let people know’. He had recently lost a friend to Covid, and was worried about Covid spreading to people with underlying health conditions or who had not been vaccinated. Fahmida said, ‘You need to care for others’ by telling them. Sindhu let the whole neighbourhood know because she ‘didn’t want to infect anyone’.
Feelings of responsibility sometimes came with feelings of guilt, even when people had been following rules and guidance. Miura felt guilty because ‘you feel like you’ve passed it on and you don’t know if that person is going to be ok or not’. Matt said ‘you wouldn’t want to be the person who was responsible, even without fault, for someone else not being well’. Samena said that it had been ‘horrible, absolutely horrible’ to have to tell people. Frequent changes in government guidance made it difficult for people to be always sure they were acting safely. Gulsoom said, ‘There’s constant changes in the government guidelines and I think it’s just really, it’s constantly confusing’.
As well as feeling personal responsibility, people we spoke to also recognised that there were factors beyond their control that influenced the spread of Covid and how ill people became. Emma said that ‘the evidence is overwhelming that what the job you do, where you live, your socioeconomic status is most, those are the most important aspects of whether or not you actually succumb to this thing’ (see Risk from exposure).
Some people also discussed the government’s responsibilities to protect people from Covid. Paul thought that the government was not looking out for him during the pandemic and felt vulnerable. Temitope said that the government had done their best. Surindar was frustrated that the government had proposed there would be a ‘ring of protection’ around care homes, like the one her husband was living in, but said ‘I didn’t see any ring of protection and I still don’t see it.’
Sometimes people we spoke to didn’t feel comfortable about telling people that they had Covid. Shirin reflected that ‘not everybody can actually talk openly about their Covid situation’.
Several suggested that there was more secrecy about having Covid at the beginning of the pandemic when it was a new illness. Rabbi Wollenberg, who caught Covid in March 2020, remembers ‘it wasn’t something we were sharing’. Mr Eshaan, who also had Covid early in the pandemic, only told immediate family that he was unwell because of what he thought was stigma associated with having Covid.
Some people we spoke to didn’t want to worry or upset others, particularly at times when there were high numbers of deaths from Covid. Lyn didn’t mention she had Covid to her parents because her aunt had recently died from Covid.
By 2021, lots of people knew someone who had already had Covid. Sonal said, ‘I didn’t feel there was anyone I didn’t want to tell. Because by this year it was very popular. There was nothing to hide about.’ Ayny caught Covid in December 2020, when Covid was ‘spreading like wildfire’, and thought there was less judgment because it was ‘kind of inevitable’ that people would get it. Kashif felt there was less stigma because ‘it was so around, it was so high and a lot of people had it’.
Even when Covid became more common, some people we spoke to were worried about being judged by others for having caught Covid. They were concerned that they would be perceived as having broken rules or taken risks, even if they had been acting within government guidance. Mohammed suggested that some people in the Asian community didn’t want to disclose that they had Covid because they were worried other people would think that ‘they are not good people’.
Abdul and Nargis only told people about Covid when it came up in conversation. Rabbi Wollenberg remembered thinking ‘it was kind of my personal business, but I wasn’t specifically hiding it’.
Some people we spoke to felt very comfortable to tell other people about having Covid. When Elvis found out he was positive he told people all over the world, ‘I contacted people in Africa. I contacted people in America’. Mahabuba got her Covid result in the middle of the night so the first people she spoke to were family in a different time zone in Bangladesh.
Robert didn’t feel there was any stigma in having Covid and thought that talking about it made people reach out to him. He said ‘the world is better where people speak out rather than be silent’. Cindy said, ‘it’s nothing to hide’. She understood that some people don’t want to talk about their health issues with other people, but felt that ‘there’s no shame’ in having caught Covid. Aytana wasn’t embarrassed because ‘because we’re all in it’.
People mentioned positive and negative reactions after telling people they had Covid . Ayny was ‘just inundated with the amount of response of flowers and cards and people sending me stuff’. Rabbi Wollenberg was overwhelmed by the kindness shown by people in his community.
Others felt that they were sometimes stigmatised for having Covid. There was confusion about how long after getting infected people could pass Covid on. Sarita knew her infectious period was about 10 days and was frustrated when people wanted to keep away from her for longer.
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