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Keith is part of two cohort studies. He joined these studies through his GP. He is keen to continue his participation because he finds them interesting and hopes it will improve medical practice. The only concern he has is in regard to data use.
Keith is married and has one child. He is a self-employed educational consultant. Ethnic background: White English
Malcolm started taking part in a medical cohort study in 2009. It has involved attending two hospital appointments ten years apart. The first time he had an electrocardiogram (ECG) and an ultrasound and the second appointment involved memory and cognitive tests. Apart from personal reports, he would appreciate getting an update about the study in general: about what it's being used for, how useful it's been and just a little update, a little summary every year to the patients would be well-receive.
Malcolm is married and has one daughter. He took early retirement at age 50 due to the onset of a chronic condition and became self-employed. He continues working as a...
Anthony started to take part in a cardiovascular cohort study in 2007. Participation has involved medical check-ups, tests like ECG, blood samples, memory tests, and lots of question. In the last 16 years, Anthony has volunteered to two other medical studies. He feels that medical research is very important and taking part would be of benefit to other people in the future.
Anthony is married with grown-up children. He is a retired farmer. Ethnic background: White British
Alan Y's participation in a medical cohort study came about when he spent time in hospital with a suspected transient ischemic attack (TIA). His two main motivations to take part were to understand why someone like him with an active and healthy lifestyle was affected with a health condition and, secondly, because he wants to help other people.
Alan Y is married and has two grown-up children as well as grandchildren. He is retired but keeps active doing Duke of Edinburgh expeditions and as a volunteer minister in...
Ian was diagnosed with motor neurone disease just over two years ago, in 2008. He has taken part in several research studies, including a biobank study which aims to improve the diagnosis and understanding of MND.
Ian is an insurance consultant. He is married with two children aged 21 and 17. Ethnic background: White English
Roland has a rare form of motor neurone disease (MND) called progressive muscular atrophy. He is part of a study using blood samples, scans and other tests to improve the diagnosis and understanding of MND. He has also agreed to donate his brain to a brain bank.
Roland is a retired computer consultant. He is married with two grown-up children. Ethnic background: White British
John has been part of a cohort study for ten years. Through the study, he took part in some research about using MRIs and, through this, he learnt more about his brain health.
John is married and has one child. He is a retired science filmmaker. Ethnic background: White British.
Alan Z is part of a 5-year renal (kidney) cohort study. His participation has included blood tests and answering questions at his GP surgery. He is motivated to take part in the study to help society and improve medical knowledge.
Alan Z is a retired electrical engineer. He is married and has two children. Ethnic background: White English
Douglas is part of a clinical trial about cholesterol. His participation usually involves having his blood taken. He does not mind this as long as the medical professional is skilled as he has had some bruising in the past.
Douglas is a retired finance director. He is divorced/separated and has no children. Ethnic background: White Scottish
George is a part of a stroke cohort study where he is asked once every two months about life after a stroke. He has a positive attitude about participating and encourages others to do so.
George is single and has four children. He was a CCTV operator before he had a stroke in January 2015. Ethnic background: French African
