Profiles

Here, you can find any of the interviews on this site.



Kay - Interview 09

Kay has been involved in two clinical trials to test improved prophylactic medicines for cystic fibrosis. She describes her experience of taking part as 'fantastic'. Her advice to others thinking of taking part in similar trials is to be fully informed.

  • Background

    Kay is 23 years of age and was diagnosed with cystic fibrosis at the age of two months and Diabetes at age 18 years. Kay lives with her parents, works...

  • Age at interview 23
  • Sex/Gender Female
  • Jenna - Interview 42

    Jenna was invited to take part in a randomised placebo controlled trial. The trial is a three year trial and Jenna has been in the trial for one year. Jenna is enjoying taking part and everyone at the hospital has been helpful and friendly.

  • Background

    Jenna is 13 years of age and attends her local senior school. She lives with her parents and her younger sister. Jenna was diagnosed with polyarticular idiopathic juvenile arthritis at...

  • Age at interview 13
  • Sex/Gender Female
  • Ryan - Interview 47

    Ryan is taking part in a randomised placebo controlled drugs trial. Ryan was happy to take part and help other children in the future, and to help improve his own health.

  • Background

    Ryan is 12 years of age, White British, lives with his parents and brother, and goes to a local school. Ryan was diagnosed with polyarthritis at the age of 8.

  • Age at interview 12
  • Sex/Gender Male
  • Toby - Interview 50

    Toby was diagnosed with migraines at the age of 6 years. He recently took part in a randomised placebo controlled drug trial. Toby has completed the trial and found out that he was taking the placebo and not the drug.

  • Background

    Toby aged 11, is White British, lives with his mum and attends a local primary school. Toby’s after school activities include boxing, cycling, football and tennis.

  • Age at interview 11
  • Sex/Gender Male
  • Joanna - Interview 53

    Joanna was admitted to hospital because of stomach pains and aches. She was diagnosed with vasculitis and soon after diagnosis was invited to take part in a randomised placebo controlled trial to which she agreed.

  • Background

    Joanna is 17 years of age, White British and lives with her parents. She is currently at college studying musical theatre. Joanna was diagnosed with vasculitis when she was16.

  • Age at interview 17
  • Sex/Gender Female
  • Alexander - Interview 55

    Soon after diagnosis Alexander was invited to take part in a clinical trial by the consultant at the hospital. The trial is a randomised placebo controlled drugs trial and is double blind. Alexander is hoping that by taking part his health will improve.

  • Background

    Alexander aged 18, is White British and lives with his mum. He was diagnosed with systemic juvenile polyarthritis at the age of 16. Because of poor health and taking part...

  • Age at interview 18
  • Sex/Gender Male