My husbands a doctor and he happened to be working at a particular hospital in London and he bumped into a registrar who worked for a consultant there, a gynaecological oncologist who, and the registrar said “Don’t do anything until you’ve seen this consultant.” So [my husband] arranged it through the secretary and asked if we could have a second opinion and he was willing. But we had to get a letter from the original consultant so we phoned his secretary and she arranged for a letter to be sent so that I could be referred to the new consultant in London.

We had a big meeting that time with several members of his team, the registrar, the Macmillan nurse, everybody was there and we had a very open discussion about what was available. And it came down to the fact that either it was going to have to be a hysterectomy or they had just seen a new operation carried out in France that they were willing to try here if I was willing to let them do it and that was the radical trachelectomy.

So how did you feel about that?

We felt we had nothing to lose because if it didn’t work then they could still do the hysterectomy afterwards so we thought it had to be worth a try to see if it would give us the results that we needed.

Yes I went into theatre. They put all the monitoring leads on you, blood pressure cuff, a thing on your finger to test your blood/oxygen level and then you have a little needle in the back of your hand and have your anaesthetic and you just drift off to sleep and you don’t know any more, nothing, until you wake up. You hear someone calling you in recovery. And my first recollection, I can still feel it now, is such a dry mouth. I had such a dry mouth it was unbearable and the nurse was putting some lemon and glycerine on little spongy sticks and wiping my mouth around to try and unstick it because it was so dry. And that’s my first recollection of when I woke up. I wasn’t in any particular pain. I had a pain control pump which you just press a button as you need pain killers and that keeps you fairly comfortable. I was obviously a little bit sore but nothing, I wouldn’t say I was in agony or anything. I just spent the next day feeling, or the rest of the day really feeling just really woozy from the anaesthetic.

And then the actual, after the operation, I don’t really remember any of the being in recovery. I remember waking up downstairs in, in the ward and I was very, very thirsty, I remember that and I remember that because of the risk to your gut they wouldn’t let me drink and I remember really being so thirsty and that was the worst thing, that night was so long because I was so thirsty and I just wanted to drink water. That, that was the worst bit, apart from, I mean I had, you have strong pain relief, morphine afterwards but the worst bit was being thirsty and not being able to get up.

I was, I did have a reaction to the morphine and it made me itch, it made me itch a lot. And they gave me something for that but I didn’t realise, I didn’t realise that even though I was itching like mad I didn’t think to tell the nurses for ages and I wish I had now because I wouldn’t, I wouldn’t have itched for twelve hours and scratched so much. And I was quite sick as well but I had something for that. And it was very painful. It was painful definitely and I didn’t expect it to be so painful and I didn’t expect the bleeding to be so heavy as well. I think I really wasn’t very realistic. I thought I would be up and out because I was young and relatively fit I thought I would be up within two or three days and back to normal. I think I just wasn’t realistic about it all.

I didn’t expect to feel as weak as I did. Because I’d always been quite active, I’d walked a lot, I was really quite surprised that just standing for any length of time made me very tired. I was quite surprised by that, how weak I felt. And I remember the first time I went for a walk on my own I had to sit down half way and I was only going down the road, and I was quite surprised by that. That I felt quite vulnerable because I didn’t feel as strong as I normally felt.

I mean the initial two, three weeks, it was uncomfortable and painful. And I think maybe looking back now I should have relaxed more but I was quite adamant I was going to get going and do things and I was going to do my housework and I was going to be active.

I have to say I quite enjoyed my post-op time at home. I, I enjoyed, I did quite a lot, I think I was quite active and I enjoyed it. And I was quite surprised.

So how long was that period?

That was twelve weeks, I think probably I could have gone back a little bit earlier. But I think once, you mustn’t rush too quickly to get back to it because once you’re back in work, you’re back in work and people will make allowances for you but really, and especially with my job, you’re on your feet, once you’re back you have to be back and be fully recovered. So I wouldn’t rush to go back, take, take that time. And do nice things, don’t feel guilty about being off work. Do nice things, go to the beach, go for a walk you don’t have to adopt a sick role and be in the house all the time.

I suppose you don’t feel as relaxed as may be, I mean every pregnant woman worries but you have that additional worry because theres a risk of premature labour. You have to have a lot more scans and you seem to constantly be at the hospital. You have some steroid injections to make sure that the baby’s lungs develop quicker in case theres a premature labour. So it is I think a bit more nerve-wracking and as I say you do feel like you’re at the hospital all the time. And the first pregnancy I worried from one appointment to the next about what’s going to happen next because [son’s name], my son was the first child born after a trachelectomy so nobody knew what was going to happen. So, but the second one it was a lot, I felt a lot more relaxed because wed done it once so we could do it again, so it wasn’t such a problem.

I didn’t go into labour with my first one but he was born at 35 weeks. I had a strange pain and they weren’t sure what it was so they said oh the baby’s big enough, well just deliver him now to be on the safe side. And he was absolutely fine, didn’t have to go to special care or anything. The second one, my waters broke at 36 weeks. I didn’t go into labour but obviously I could have done having left it a few more, but you have to get to the hospital quickly because they have to deliver you before you go into labour, you can’t let the womb go into labour after a trachelectomy. So we got to the hospital and they were there waiting, did the caesarean section straight away and she was fine as well and didn’t need special care. They’re both bonny babies.