Messages to others about cervical cancer

Many women we interviewed used their own experience to encourage others who were facing cervical cancer to think positively and not to give up hope.

Coping with a cancer diagnosis

The advice was not to be brave all the time and to accept support from others. One woman advised others to ask their GP for anti-depressants if they found they were not coping. Another stressed the importance of believing the information that doctors gave, not assuming things are worse than they actually are and recognising that people do survive cancer.

She advises accepting the support of others.

Age at interview 49

Gender Female

Age at diagnosis 43

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She advises talking to friends and from her own experience a bad prognosis can work out to be…

Age at interview 36

Gender Female

Age at diagnosis 27

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She suggests positive thinking, believing the diagnosis that doctors give and recognising that…

Age at interview 34

Gender Female

Age at diagnosis 32

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A couple of older women viewed their cancer as an episode in their life which is now over. Others, who had cervical cancer several years ago, described how things had improved over time. One woman recommended getting personal effects in order, to reduce any additional worries.

She explains that cancer was an episode in her life which is now in the past.

Age at interview 53

Gender Female

Age at diagnosis 51

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She stresses that things get better with time.

Age at interview 38

Gender Female

Age at diagnosis 34

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Many said that there had been positive aspects to having cancer (see ‘Living with cervical cancer‘)

Information

Many women encouraged others not to be afraid or embarrassed to ask their doctors questions and to get as much information about their illness and treatment as they felt comfortable with. Several said they had found it helpful to take a friend or relative with them to their appointments. Others recommended talking to other patients which many had found supportive.

She encourages women to ask their doctors questions and to take a friend or relative to…

Age at interview 46

Gender Female

Age at diagnosis 36

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Treatment

A few encouraged others to find out all the available treatment options if they felt what they were being offered wasn’t right for them. Some women recommended getting a second opinion if they felt unhappy with the treatment choices.

She advises questioning doctors about symptoms or treatment if you have doubts about the advice…

Age at interview 46

Gender Female

Age at diagnosis 36

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She recommends getting a second opinion about the treatments available and stresses the…

Age at interview 39

Gender Female

Age at diagnosis 31

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Another stressed that treatment plans are designed for individual patients and women should not feel they were being given a lesser treatment if it was different to others.

A few who had used complementary approaches recommended it to others, in conjunction with their medical treatment and after discussing it with their doctor. One woman who had radio-chemotherapy encouraged others to try to eat well during their treatment because she had found this had kept her strong and aided her recovery.

Some women who had had surgery encouraged others to take time to recover from their hysterectomy or trachelectomy and not to push themselves too much. One young woman gives words of encouragement to others who need to have a pelvic exenteration.

Recovery from pelvic exenteration is hard work but you can live a full life afterwards.

Age at interview 27

Gender Female

Age at diagnosis 25

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Symptoms and cervical screening tests

Women who discovered their illness by having bleeding between periods or after sexual intercourse encouraged others to seek medical advice quickly if they experienced any irregular bleeding. Irregular bleeding can also be a symptom of many other things such as fibroids, but it is important to get any changes checked by a doctor.

Several women encouraged others to know their own body, to trust themselves if they felt something was wrong, to question their doctor and ask to be seen by a specialist if they felt their concerns were not being dealt with.

She advises asking to be referred to a specialist if you’re not happy with what your doctor is…

Age at interview 37

Gender Female

Age at diagnosis 32

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Women who discovered they had cancer after having an abnormal cervical screening test result stressed the importance of having regular cervical screening tests because it had saved their lives.

She explains why regular smear tests are important.

Age at interview 43

Gender Female

Age at diagnosis 42

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Sex and sexuality after cervical cancer

Both being diagnosed with cervical cancer and undergoing treatment can affect how a woman feels about herself sexually. Some treatments for cervical cancer, such as...