Well, my message to other people is that you’ve got to learn to build trust with the people that you’re working with in the medical profession, and if you’ve got that trust, then go with them. You know, work with them and have the confidence of, of believing them and sharing and just doing everything they want, I think a lot of people might be scared. Others may be very down and depressed because of the situation they’re in, and I fully understand that. I mean, I’ve had moments where you feel depression maybe coming on, but luckily, I’ve felt that I’ve had the strength to overcome that. But again, I’ve overcome that because I’ve been lucky that the medical teams that we’ve had around us who have always been there to lift us. And if they’re prepared to do that, well then I’m prepared to give them any time they want.

So I’m a great believer that we give them as much time as possible. Yes, we don’t want it to get too much that you can’t go out and enjoy life as well, but they’ve never, ever been like that. You know, it’s from time to time, Can you come and visit us? Can you give us a day and do things we want to do with you Yeah, do it. Grea. And have lunch on them [laughs].

So the reason that cohort studies are important is that they can answer health questions which you couldn’t answer in another way. So, for example, the study I work on, chronic kidney disease, you can’t do a randomised trial of whether chronic kidney disease gives you results in dialysis or results in cardiovascular health problems.

So you have to just follow up a population and look within that population at what other risk factors they may have, which then may make them more likely to go onto develop long-term health problems or cardiovascular disease. So, and similarly with smoking, you can’t ask some people to smoke and not to smoke, so you take a population, find out who smokes, who doesn’t smoke and follow them both simultaneously, and that could apply to a lot of things, that could apply to weight or other lifestyle dietary issues, dietary behaviours. To, yeah, long-term find out how this affects their health outcomes.

They never sent anything back at all. All that came was a card, just, just a birthday card. Say, Happy Birthday,’ and all in the card was a picture of some children probably the same age as me when it took place. I always hoped it would be my picture. It was never my picture.

Okay.

So, nothing in it apart from the card.

Would you like to receive some feedback?

Very interested to learn, yes.

Okay.

Because, I mean, over the years, I did wonder if it was still going on. What it was used for. Always wondered what was the point in being in the project if, if you weren’t asked questions or got any feedback at all on it.

Have you ever visited their website?

I can’t remember. I think I once tried to find out about it. I don’t think I got too far, so really no, I have no insight into it at all as far as the website.

I’ve always thought it was a good thing. I’ve never known much about it. Never had any of the information. I’ve always thought it would be a good thing and I would wish to stay part of it, yes.

So again, being a dedicated Muslim and I always believe in serving mankind. So, it was not only a selfish thing or thinking, giving back to the community as well. So, if maybe my understanding, my, because I could speak, I could understand. If some mothers can’t speak but they have the same thing happening in their houses and with their health, it’s maybe through me, through my work or my impact, I can help feedback for the person’s wellbeing as well. So if the research find out something, it will also benefit directly the, my next door neighbour, my sister in law, my daughter later on in life. So that was think as well, so really giving back into the community, the work.