More about me...
Felt she needed face to face contact to fill in information gaps about her colostomy.
So that explained about a stoma care nurse and about the services that were available for taking away any items of bandages or dressings and that type of thing. That was a general booklet which was helpful.
I think at the time I would have rather that had been explained to me by a human being rather than a booklet. Because although I thought I was reasonably knowledgeable about bits and pieces of the body, I think it was, I would have preferred that had been face-to-face rather than diagrams in a booklet.
But I think perhaps I didn't understand that stoma was the method of interrupting the, the colon and I think perhaps I didn't understand the terminology, not that that really mattered all that much, but I don't think I understood that. So I think I would have been grateful for a little bit more personal help at that stage.
I didn't need bolstering up about the operation, I think I really needed an explanation of what was going to happen. That would have helped me more I think.
She needed advice about how to adapt her vegetarian diet after surgery.
And of course when you're shopping everything is aimed at being high fibre and low calorie, but really I needed the reverse.
And I, I then went to a dietician who helped me to beef-up my meals without making them higher in, in quantity and volume, it was just worth more. And she gave me several ideas for how I could beef-up my meals.
One example which was so simple and so effective I in fact, if I were having milk on cereals was to add powdered milk to my milk so that meant that I didn't have to actually have an intake of the higher quantity of milk, but what I was taking in was of a higher value and it was worth more. So, that was one way, and if I was having a yoghurt, I would add some powdered milk to that, mix it in and it didn't taste at all, and it wasn't difficult.
She describes her colonoscopy.
I think, I think I was fairly well prepared for that, um I, I did not enjoy the days leading up to it and it isn't a very pleasant experience, to have to clear one's system.
How do you do that?
I was given sachets of, of a, a liquid to mix, a drink to clear my system and that is, I think, uncomfortable as time goes on, but I think I was reasonably well prepared for that.
Everybody was very kind, I was very sore this time by the time I had cleared my system.
And then I had fluid pumped into my bowel from the outside, from the rectum and I remember feeling, putting, being moved on a, on a bed and tipped and I remember that being quite a peculiar feeling and feeling quite sort of sea sick I think. And feeling quite strange about that.
Is that so they could see different angles?
Yes, and I was shown the results of that I, they were told that I could see the results and I was, so I felt I was a bit more involved by then, and I was quite happy to see that. I mean I could see there was something misshapen and then I, just waited for the results of that. But that was done very quickly, I saw, I went back to my specialist very quickly after that.
Was it painful?
No, I think it was weird. I think the feeling was weird and I think I felt, I felt a little out of control when I was being moved on a bed and I felt a little bit strange, it was a bit like being on a fairground ride I think, but not a very pleasant one. I don't think that bothered me particularly.
So, and I think again, when I think back to that period of my life I think I was quite glad that somebody was taking seriously something that was worrying me.