Cleft lip and palate resources
CLAPA Cleft Lip and Palate Association provides information, advice, support and raises funds for cleft care in the U.K. Changing Faces A charity that supports...
Who made this cleft lip and palate resource?
Dr Aidan Searle
Dr Aidan Searle is a Research Associate in the Department of Oral and Dental Sciences, University of Bristol and a Chartered Health Psychologist. An overarching theme of Aidan’s research interests is how individuals respond to living with a health condition and their responses to management and treatment. Aidan has applied both quantitative and qualitative research methods to investigating individuals’ experiences of a range of health conditions including visual impairment in children, management of Type 2 diabetes, wound healing in chronic foot ulceration and managing depression.
Dr Andrea Waylen
Dr Andrea Waylen is a Senior Lecturer in Social Sciences in the Department of Oral and Dental Sciences, University of Bristol. Her research interests include the impact of visible differences in dento-facial appearance on quality of life (particularly related to cleft lip and palate and head and neck cancer) and the effects of relationships and communication on health outcomes and health-related behaviour.
Acknowledgments:
The researchers would like to thank all the participants who spoke about their experiences of cleft lip and/or palate, the advisory panel for their contribution to recruitment, advice and comments throughout the study and reviewing the topic summaries. Additional help with topic summaries from Mr Scott Deacon (Consultant Orthodontist, South–West Cleft Service) and Dr Amanda Hall (Paediatric Audiologist in NHS and Senior Lecturer, Centre for Hearing and Balance Studies, University of Bristol).
We would also like to thank Rosanna Preston and Anna Martindale at CLAPA head office and Jon Clarke at CLAPA Adult Voices who have supported and promoted the study.
Advisory Panel:
Liz Alberry, Clinical Director / Lead Speech and Language Therapist, South West Cleft Service
Diane Beaumont, RSCN, Clinical Nurse Specialist, Regional Cleft Lip and Palate Service, Leeds General Infirmary
Dr Julia Cadogan, Consultant Clinical Psychologist, South West Cleft Service
Professor Lynn Murray, Professor of Psychology, School of Psychology and Clinical Language, University of Reading
Dr Pauline Nelson, Research Fellow, The Dermatology Research Centre, University of Manchester
Dr Sara Ryan, Senior Qualitative Researcher, Health Experiences Research Group, Department of Primary Health Care, University of Oxford
Dr Julia Scott, Consultant Orthodontic Surgeon, Derriford Hospital, Plymouth and Royal Cornwall Hospital
Bronwyn Frayley, Lay member
Harry Feather, Lay member
Samuel Spencer, Lay member
Credits
The Cleft Lip and Palate project was funded by a National Institute for Health Research, Research for Patient Benefit (NIHR RfPB) grant (NIHR RfPB PB-PG-0213-30083) awarded to Dr Andrea Waylen.