Basically [my son] went to the doctor’s and he had his vaccination. My husband took him. He then came home, was quite agitated, was crying quite a lot, was fairly agitated, was a little bit unresponsive, couldn’t be consoled.

So we gave [my son] the medication. It didn’t, it sort of controlled his, his agitated state for a short while, but continued to be quite agitated over a couple of weeks. I had taken him back to the doctor’s a couple of times because of, well, the way that he was. And they told me that he was, just had a viral infection that couldn’t be treated. We approached Christmas, and on Christmas Day [my son] wasn’t interested in his presents or any, I mean he was over a year old so he, you know, he did, kind of knew, but he wasn’t terribly interested.

On Boxing Day we went in, and we were late waking him up, because [my son] hadn’t woken us, and generally [my son] used to, up, you know, wake at half past six, seven o’clock. Half past nine, ten o’clock we wake up and think, ‘Oh my Lord, [my son] hasn’t woken up yet. So weve gone into his bedroom and he was in the cot and he appeared as if hed had a stroke. His face was all drooping on one side and he was dribbling a lot. We took [my son] up to our local hospital and basically sat in A & E for quite a while. But then referred up on to the children’s ward. And [my son] continued, he was having episodes where he was just looking straight at us but didn’t seem to be aware of what we were doing or even of what he was doing. Now this happened, had happened a number of times up until [my son] had gone to hospital, but I thought it was just, you know what some children are like, they’re just like, ‘I’m not talking to you. I’m not your friend. Go away, leave me alone.
[My son] went into the hospital, was up on the children’s ward. Basically sort of it got late in to the evening, he hadn’t been seen, because there was only skeleton staff on with it obviously being Boxing Day. The, the doctor came in and saw [my son]. [My son] had an episode where he was very, he just flopped back on to the bed, very unresponsive. He was poking, ‘Little [name], wake up’ and all the rest of it. Called one of the members of staff. She came in, summoned the doctor straight away. And [my son] had actually had a major epileptic fit. But he hadn’t had a seizure as such, hed had an absent fit, which is petit mal epilepsy. They took him into a side room, put a line into his arm to give him intravenous antibiotics. Had a brain scan later that night and it turned out that he had encephalitis, which I believe to be triggered by the vaccine because it was one lead on from one to the other to the other. It was kind of a progressive state.

Five days after the MMR I returned from having been away for a day and suddenly noticed that my daughter was stammering. I’ve since been informed it’s not a stammer it’s called word search but I’m not sure because she stammers on her name. She clearly doesn’t forget her own name so I think it may be a mixture of searching for words but certainly there is some kind of genuine stammer as far as were concerned. And allied to this was a very strange eye movement, which I can only describe as typical of a brain damaged child. I work with brain damaged children at work and in special schools around here and I’ve had experience with children who’ve suffered trauma-type brain injuries so I thought the eye movement was fairly typical of some type of injury or brain damage, and of course I was incredibly worried.

Almost in the same breath one noticed that she was much regressed in terms of literally gagagagaga baby talk, which shed never done, even when she was at the appropriate age she seemed to just learn words and so she never did this baby talk. And the other thing we noticed was that she was reluctant to make eye contact.

That evening I took my daughter to casualty. Nothing was better, she was showing the same symptoms, if anything they were a little bit worse. I said that, ‘My daughter has suddenly developed these odd symptoms. And quite frankly I was met with a kind of blanket of ‘so what?’ disbelief.

I was very fair, I said that there were three possible causes, there may well be others but these things have happened recently, shes had chicken pox about a month ago, she bumped her head about four days ago, so we were very fair we did mention all these things, but she recovered straight away, she didn’t lose consciousness and she told us all about it. Shed bumped her head a little bit so that could have been a possible cause of course. The other cause, the other possible culprit was the MMR, five days before.

It’s also worth noting that just before she developed these odd neurological symptoms, she developed a rash it looked like a typical measles rash on her face. We actually said at the time, ‘Oh that’s her getting the measles’ rather casually. She also had pink rims to her eyes, it looked like conjunctivitis but there was no gunge.

I saw about three or four doctors, two conventional ones and then a paediatrician. We finally gained admission to a ward, again where we were greeted with a certain amount of scepticism. I stayed in overnight with my daughter.

The following morning some paediatricians looked at her. I did describe it as episodic which it was at the time and another doctor actually witnessed quite a bout of stammering and said, ‘Oh this is quite normal, speech doesn’t develop’ I said, ‘No, no I’m sorry, shes never had a stammer in her life, she can actually speak very well. This is completely new and it’s overnight, and these three possible causes and so on. And he said, ‘Oh well, you know, go away for six weeks and go and see a speech therapist. I said, ‘No you don’t understand, there is brain damage here, I’m certain there is some kind of overnight brain damage.

The following day again, the paediatricians listened and were slightly more sympathetic but again you could see the scepticism because she was running around playing with her brother and without any apparent problem, and with, with very little hint of a stammer or stutter.

It was really only because I insisted that this happened occasionally that they asked whether we wanted her kept in for tests and we said, ‘Yes, please do.And over the next few days they at least noticed episodes of weirdness where she goes sometimes she goes into a world of her own where you can’t even reach her and regresses massively. She was actually strangely malleable and biddable and weird symptoms like she wouldn’t dress up any more in her dressing up clothes. In terms of every day clothes she wouldn’t dress up in pretty dresses, which she’d adored. She was very girly. She would dress in trousers and insist on very plain colours and sort of plain rather tomboyish attire.

And these were all, if you like, weren’t hard medical symptoms but symptomatic of a change. A change that to us of course was massive in our own daughter. Having gone from being a daddy’s girl, she became very anti-me and when it got worse she actually developed what we, without even having consulted websites and good old Google or anything, what we described as autistic symptoms where she would literally go into a corner so she didn’t want to talk to any of us, and detached herself having been again wonderfully interactive with her brother when they played beautifully together. She became detached.

It’s also worth saying that a lot of these symptoms have gradually receded. We’re sort of three and a bit months beyond the jab, probably almost four now. And certainly her base line has climbed in terms of the way her symptoms are a) slightly milder, some of them, but also she seems to overcome them, her core being seems to have returned.

We lost her, straight after the MMR it’s as though the girl that we knew had disappeared and occasionally would reappear. Now it seems to be that this kind of, there’s this core, she’s really fighting hard to be back and that her real self is now fighting symptoms that attach to her, whereas before the symptoms took over and seemed to be her for a while. And so at least we know that. And also it’s worth noting that she doesn’t really have what we described as the autistic spectrum symptoms any more. She relates very well to her brother most of the time, she’s pretty good at the way she relates to us.

First thing in the morning when she has low blood sugar she’s terribly, physically prickly sometimes, and won’t be touched, which is something she never had before. She would just be so cuddly and warm and, and sweet straight away. But some days she’s like that. Her voice has returned, her bowels seem to be a lot better now. The things that we notice was her colour seems to be returning gradually, she doesn’t have that translucent skin any more. Her nappies are quite normal, in fact, and now she’s learning new skills. She lost the ability to count, she lost the ability to recognise colours. So in other words her short-term memory, sometimes her long-term memory about words she should have known like shoes and so on, disappeared. But she’s re-learned how to count, not as well as she did before she fell ill. It seems as though obviously whatever it was, was what they described as relatively mild to us was a massive, massive change and of course we don’t know what damage has been done. We don’t know if it’s permanent or temporary.

The statistic on the NHS’s own leaflet says less than one in one million children could get some kind of encephalopathy. Well, sadly our daughter is this one in one million or less than one in one million, I believe. And indeed you know, the doctor that’s treating us says that he also believes that this is a possibility now.

They’re puzzled that it’s so episodic, and they tell us quite frankly that they are. We have actually a written report that says, and they’ve admitted this verbally, if it’s not a wild virus, it’s certainly not chicken pox they say, if it’s not a wild virus then it almost certainly is the attenuated measles virus in the MMR, which shocked us. That there was this admission. It’s buried, but it’s there, it’s not buried in a kind of a suspicious way, but it’s there in the verbal report. So this we thought was actually a very positive healthy sign. But then it was accompanied by a lot of backtracking.

We saw the man’s boss and he just basically poo poo’ed the whole thing, ‘Nonsense, this never happens and the MMR’s perfectly safe. So we were back to square one in a way, and because hed obviously passed this on to our neurologist that we were seeing, the neurologist then said, ‘Apparently it isn’t what I thought it was. And so again we were being gently stonewalled again, and whenever weve mentioned the word autistic it’s like weve sworn the most obscene imprecation known to man.

So I now say well symptoms that are like symptoms on the autistic spectrum but I know that MMR doesn’t cause autism. I have to add that rider every time I talk about her symptoms. It’s quite clear that she isn’t congenitally autistic in terms of that it was something that she was born with but nonetheless, whatever happened to her has caused symptoms that are like symptoms on the autistic spectrum. And there is no doubt about that I am absolutely convinced, if this is a natural occurrence that some weakness in her make up so be it. If it is something else that’s caused it so be it. But something overnight caused her to have regressive behavioural changes, disengaged behaviour that can only be described as similar to autistic symptoms.

Mother:We have had the experience of seeing that our second son was damaged by the vaccines and without question, in our minds the trigger, the vaccine trigger for his autism, because that’s what he has, regressive, late onset regressive autism. The trigger for that was the MMR vaccine. He was ill within two days of having the vaccine. I want to stress here, by the way that he wasn’t suffering convulsions. You do hear of people who have very dramatic stories to tell and I’m not here to lie and say something happened that didn’t happen. He wasn’t convulsing. He wasn’t fitting. But he wasn’t well either. He ran a temperature and his skin erupted and he had a very, very, very worrying persistent hacking cough that just wouldn’t leave him. Now that went on for two nights, and at the end of that I’d had enough and I took him back to the doctor. And that was the occasion when, eventually we got hold of his medical records and I couldn’t believe because there in brackets was ‘This child is not ill’, underscored. And I thought well that’s very odd.

Father:The point is as well

Mother:[our middle son], well if I can just finish the progression of what happened, so’ he wasn’t well. We noticed very quickly after that, that he wasn’t eating properly. Now this is a child who’d eaten virtually everything we gave him, had a very good appetite and was actually quite forward because he was trying to feed himself. And even our unvaccinated baby hasn’t quite got to that stage.

Father:[our middle son] was feeding himself at nine months, more or less.

Mother:Nine months, our second child was trying to spoon feed himself. That stopped and all, this child wanted was bottles, milk, milk, milk, want milk. We didn’t worry initially because we thought well hes not been well. That’s quite understandable that hes at the moment off his food. But the thing was he went off his food and stayed off his food. And from then on he never ate normally again. His diet became extremely restrictive, which is a very, very common feature of autism, very common indeed. And he would really hardly eat anything. But what he did want was milk by the gallon.

Within two weeks, we had noticed that hed become very socially withdrawn and again that was a marked departure. This was a baby who had been extremely sociable and he had had very good eye contact. And responded when people walked into the room, he was looking to see where they were, very, very sociable baby. He, he was babbling. Hed got one or two words. Everything was there. Well, and the other noticeable thing was, how keen he was on his older brother, hed sort of crawl after him and swarm all over him.

Well that stopped. And we started to notice that he was sort of removing himself and hed be in a different part of the room and hed have his back to everybody and hed be sitting and looking at something. We noticed that within the fortnight, within a month we were starting to have worrying conversations with the nursery, he used to go to, suggesting the same thing. They were having real trouble giving him anything to eat and he was avoiding the other children. There were only young infants but he was avoiding them.

Father:It’s documented in his books.

Mother:And he was never the same child again. Now that’s something you often hear about autism is “Oh well, yes, but it, it sets in, in the second year of life. And people link it, well I can’t answer for anybody else, but I do know that this set in within a very short space of time after him receiving the MMR vaccine. And I cannot believe that was a natural progression that just wallop happened at that time. I’m sure that vaccine triggered the onset of this autism, absolutely certain and you are as well, aren’t you?

Father: Hmhm, and again when we raised the, the point with the doctors concerned, they’re meant to raise a yellow card with a reaction to a vaccine because we went in and raised the point that he was not right since he’d had the vaccine. There was no yellow card registered and it seems to me and my wife, that reaction was sat on by the doctors.

Mother’And it was the timing of the whole thing, this became apparent, this change happened very, very quickly after him receiving that vaccine. Yes, I’ve had various doctors try to shoot me full of holes but I’m not talking about things that happened over six months after receiving this vaccine. These were symptoms that were really apparent or start, had started to become apparent within a fortnight. And since wed made allowances for the fact that hed been ill, if he hadn’t been ill, we probably would have noticed it, perhaps even sooner.

But that was the point at which he changed and if’ I always say when people question this and they’re right to question it. But if you did a graph of his development and talking about his, you know, his social development and, and his development in terms of his motor development and everything else, it was steadily going up. In fact a lot of his milestones, he was meeting his milestones. I’ve had comments that I’ve listed from the health visitors, ‘Bright social baby – six months old,’ ‘meeting his milestones well – eight months old’, ‘normal healthy little boy – one year old. So this is a child that was developing normally and it’s been witnessed and attested to and signed up to by health visitors and other professionals who apparently know what they are doing. Hes been seen by different health visitors, as well. So this wasn’t just one person, there were two or three different health visitors who saw him, all of whom documented that his development was normal.

Now it reaches an apex and then it goes down, and the turning point for that was, that happened in his thirteenth month. To me that is more than coincidental, other people will just have to make their own minds up. And I do realise that there are some people who will say, ‘This is coincidence, and ‘poor sad parents, they’re looking for a peg to hang this on. But that was our experience and that’s why we make that link, it was too coincidental. This isn’t something blithely second year of life. Second year of life is a twelve month period. This happened or it started to happened and symptoms were apparent within a very, very small time frame, that’s how we make the link.