Rachel

Rachel had planned to breastfeed her baby, but because of various clinical reasons she was not able to and feels disappointed about this.

Rachel migrated to the UK from West Africa. She had been regularly testing for HIV in her home country and continued doing so in the UK. When she tested positive for HIV in 2015, Rachel was worried it would affect her immigration status and did not want to attend the HIV clinic. She also felt concerned when a healthcare professional took her personal details. However, a nurse told her it would not affect her immigration status or job prospects. She was also told about Undetectable = Untransmittable[TR1], and that she could have babies born without HIV.

Her medical team told her about the latest infant feeding guidelines and made a plan to support her to breastfeed. Rachel felt breastmilk was important for nutrition, health and growth. However, Rachel’s baby was born premature and had to stay in hospital for three months, which impacted her ability to breastfeed. Rachel did not have enough milk supply to exclusively breastfeed. During that time, her baby was given donor breastmilk. Although Rachel expressed for three months, the breastmilk was not given to her baby as the hospital staff felt it was not enough of a supply to avoid mixed feeding. Rachel was disappointed that her baby needed donor breastmilk and felt guilt that she could not give her baby breastmilk because of her HIV.

While she was on the maternity ward, Rachel was shown how to mix formula milk and bottle feed. She received free formula milk from the maternity ward and HIV clinic, but not sterilising equipment.

People have asked Rachel why she did not breastfeed. She feels that not breastfeeding is associated with promiscuity and so she worries about the stigma.

[TR1]Please add link to Useful resources;

Rachel discussed how she received specialist care as a woman living with HIV.

Age at interview 30

Age at diagnosis 24

Rachel felt it was her fault that she couldn’t breastfeed her baby, and was also aware how mothers in this position maybe judged by those around them.

Age at interview 30

Age at diagnosis 24

Rachel’s baby had donor breast milk in the hospital but didn’t tolerate it well so was put on formula. She felt it was her fault that she couldn’t breastfeed.

Age at interview 30

Age at diagnosis 24

Rachel worried that her HIV diagnosis would affect her immigration status in the UK.

Age at interview 30

Age at diagnosis 24