Sindhu

Gender: Female
Ethnicity: Indian
Background: Sindhu is 40 years old and is Indian. She is married with two children and works as an accountant. Sindhu’s sense of smell and taste changed when she had Covid. She says that even now, some foods do not taste the same as they did before she had Covi

When the pandemic first started, Sindhu was worried about how it would impact her personally. She thought that she was more likely to experience Covid because she has had part of her lung removed, and her husband works in medicine so was more likely to be around patients with Covid.

Shortly after Sindhu’s husband had his first Covid vaccine he started to come down with a fever and back pain. At the time, Sindhu put it down to him working too hard. Shortly after Sindhu started to feel really tired, but did not have any other symptoms of Covid. However, her husband suggested that she do a Covid test. When they called 111 to request tests they were told that they could not be tested because they had none of the officially-recognised three main symptoms of Covid. A few days later Sindhu started to have chest pain, so her husband rang 111 and again they said that Sindhu could not be tested because her symptoms did not suggest Covid. When Sindhu’s condition got worse and her husband rang again, her husband lied and said that she also had a fever and cough just so she could be tested. The test came back positive for Covid, and her son also tested positive.

Sindhu says that one of her more extreme symtpoms was change of smell and taste. She explains, I could not smell bananas or oranges, it was not like I lost it [my smell], everything was so enhanced She says because of changes in her smell and taste she could not eat and had to eat very basic and tasteless foods. Even now, Sindhu says that she is a little bit off food

Ben said his Long Covid Facebook group had been a good source of information on how to manage different symptoms. He recommended joining a private Facebook group.

Age at interview 40

Ben describes how it can be difficult to decide if information online is accurate or a misleading ‘waste of time’.

Age at interview 40

Ben is an active member of a Facebook group for people with long Covid. He explains how ‘long haulers’ with long Covid can give useful advice. He says it is important for online group administrators to check no ‘misinformation’ is posted.

Age at interview 40

Ben said his GP had been ‘absolutely brilliant’. She had been very flexible. They have become ‘co-experts’ on his Long Covid symptoms.

Age at interview 40

Ben said he received excellent care on two visits to A&E. He felt let down and “dismissed” on another visit.

Age at interview 40