Esther

Gender: Female
Ethnicity: Jewish
Background: Esther is 26 years old and is Jewish. Esther tested positive for Covid in January 2021. She unclear when she caught the virus, believing she either caught it attending her grandfather’s funeral or when her family gathered to support her grandmother during that difficult time. Esther was ill for weeks after testing positive and now suffers from long Covid symptoms.

Esther first heard about Covid on the news. She knew as the virus spread through Europe it was a matter of time before it reached the UK. Esther eventually caught Covid in January 2021. She believes she caught the virus after attending her grandfather’s funeral, although, she is not certain, as she may have caught it during the time her family gathered to support her grandmother after her grandfather’s death. Esther recalled how following the funeral her family group chat was flooded with messages from family members stating that they had also tested positive.

Both Esther and her partner tested positive for the virus. While her partner had relatively mild symptoms and quickly recovered, Esther was unwell for weeks. She recalls it taking three weeks until she was able to eat again and that symptoms persisted four to five weeks after she had tested positive. Esther’s main symptoms included extreme fatigue and a high fever, the latter causing her to seek medical advice through NHS 111. It was the initial fatigue that led to Esther taking a test. She told her partner Oh my God, I feel like I;ve been hit by a truck Having heard this phrase used by others with Covid, her partner encouraged her to get tested.

At the time of the interview, Esther felt she had not regained her previous energy levels. She was previously a very active person but found herself becoming breathless and felt her fitness had gone. It was on the news that Esther first heard about the term long Covid;. However, it wasn’t until a later conversation with her partner that Esther started to consider that she herself had long Covid. She visited her GP, who diagnosed her with long Covid, prescribed an inhaler for her breathlessness, and ordered her a chest scan. Esther expressed that she would be upset if she caught Covid again as she worried it would make her long Covid symptoms worse.

Jessie found it helpful to work with an occupational therapist at work. She was ‘clued up’ about what having Long Covid was like and the support people needed at work.

Age at interview 26

Jessie says they should have taken more time off work to recover and advises others try to rest as much as possible after having covid.

Age at interview 26

Robin went back to work when they were still unwell. They wanted to get back to some normality. When they felt unwell at work, they found it difficult to explain to colleagues.

Age at interview 26

Grayson said it is important that people with Long Covid were not left to “fend for themselves”. He thought hospitals and GPs should have special Long Covid clinics.

Age at interview 26

Grayson said the NHS111 nurses that he spoke to helped to calm him down and explained when he needed to go to hospital.

Age at interview 26

Grayson said a lot of people who had bad Covid symptoms had been “traumatised to a greater or lesser extent”.

Age at interview 26

Grayson says Long Covid has affected his hobbies of hill walking and visiting the theatre. He is more nervous about going on walks on his own and self-conscious about coughing in public.

Age at interview 26

Grayson had difficulty breathing, muscle soreness and pain, acute dizzy spells, ringing in the ears, headaches and brain fog. His breathing problems developed into asthma and his dizziness could be frightening.

Age at interview 26

Tom had been able to see specialists using private medical insurance through his work. He had mixed experiences with the specialists he saw but praised the occupational therapist that he had been in touch with through work.

Age at interview 26

Tom hadn’t looked for peer support online. He tends not to join forums or discussion groups, but he does lots of Google searches to find information.

Age at interview 26

Tom said he appreciated the pressure the NHS has been under during the pandemic but said the lack of medical support had been ‘galling’.

Age at interview 26