Oh well, I think – you know – it says in there that you might get some feedback, but. I don’t know how applicable that is, or how relevant that is to yourself. How applicable – I don’t know. I mean, it would be nice I suppose to, to get more information. But then again do you really want to know everything? You know, if they come up and say, “Oh your dementia risk or whatever could be very high.” I don’t know. Do you want to know that? [Laughing] or not, you know?

Yeah, would you want to know that? No then, or?

I don’t know. You would have to have a discussion I suppose wouldn’t you? I mean you have got to plan your life. Same as the cancer you have – you can’t put your head in the sand. You know, you have got to plan. But you have – I found out, you want to ask questions. Because you want reassurance. But then you’re not getting the reassurance, and then you feel worse. So that’s what I’ve learned in the last two or three months really.

That’s interesting.

Be careful what you ask, yeah.

So you won’t always – you don’t always get the answer that you want to hear, or? Yeah.

Yeah, yeah. You’re desperate to know, but of course you really want the positives don’t you? And then if they can’t give you that, it doesn’t feel so good. You have to get your head around that again.

What happened with that?

That was a little bit unfortunate. Well they were supposed to take the blood sample at my pre-op, but my breast cancer nurse forgot to refer me. I think there were a couple of guys at the [name] Hospital who are based there, who were taking – I think I was supposed to meet them at the pre-op, and sign the consent forms. And then the blood samples would be taken at that point. But I’d got missed off. So I then arranged – the breast cancer nurse arranged another – on the morning of my operation, that they would come to the day-case unit and I would sign it there. And that was fine. And they took tumour samples I guess, from the operation. And they – after the operation they tried to take some blood from me while I was still under the aesthetic but it didn’t work because I was so dehydrated. And then they had to try again during my recovery. And I became really ill. That was a bit unfortunate. It was just a mishap, because would it have been done at the pre-op it would’ve been fine.

Yeah.

That was the only downside that was a bit annoying. And then having to deal with the stress – not much of a stress, but you have the operation and then you have to, have to go to nuclear medicine. I had to go to a day-case unit. I had to meet these guys. All like within an hour.

Yeah.

That sort of – that could’ve been done beforehand, would’ve been a bit easier.

No I think, yes. I do want information, in a way. Although I said earlier, be careful what you ask for. But it is – you want to know really, don’t you. And also you know I have a brother, and I have children, and I have cousins, and if there is something genetic they need to know and be prepared.

Yeah.

Definitely, you know.

Yeah. So you would rather know, rather than not know, potentially?

Yeah. Yes I think so, yeah.

Yeah.

Yeah. But I think you need – you need advice when you get that information. You can’t just be given – this is whatever, what it’s going to be. But you can’t, you haven’t got the knowledge yourself to, to understand what that really means.

Yeah.

So I think you need some guidance then, I think.

And what sort of guidance would you want to see, or have with that?

Well you can talk to somebody – a doctor or a nurse or somebody – about these results, and say, “Well what does it mean for me in reality?”

Yes.

Because on paper it might be completely different to real life, isn’t it.

No it was all fine really, I’m quite happy with the information. The website’s available, seems quite clear. Yeah.

Yes, have you had a look at the website?

Mmm yeah.

What do you sort of think of it, and was it easy to access and?

Yeah it was. Yeah, there’s different strands for users or people who think about it, and researchers. It wasn’t made too simple, that’s sometimes a little bit degrading isn’t it, when they just give you the most basic information. So at least there are links on there, on how do they do the genome, and stuff like that. So people can find out more if they want to, yeah.