Vanessa

After having lymphoma, Vanessa was diagnosed with breast cancer. She was approached by a nurse recruiting for the 100,000 Genomes Project whilst waiting to have premedication before surgery.

Vanessa was diagnosed with lymphoma in 2011 and after several stages of chemotherapy and stem cell replacement, she went into remission for about three years. Shortly after, she discovered an indentation on her breast followed by a lump. Her doctor referred her immediately for treatment and a mastectomy. She says that her treatment for breast cancer has been absolutely amazing and feels the NHS have always been there for me.

While waiting for her premedication before her surgery, Vanessa was approached by a nurse recruiting participants for the 100,000 Genomes Project. Vanessa was eager to take part when she realised that it would only involve an extra blood sample being taken during other procedures she was undergoing. The nurse didn’t have much time to explain the full extent of the project because she approached Vanessa in the waiting room before an appointment. However, she was given an information pack explaining the study in greater detail. Vanessa felt that she would have liked to have been able to spend more time talking to the nurse about it, but acknowledges that this wasn’t possible at the time. Vanessa trusts that the information she has given will be used for good causes even if it is passed on to pharmaceutical companies.

Vanessa very much encourages and supports medical research because she thinks it is important to understand the causes of illness, and finding ways to prevent disease. Her message for others thinking of taking part in medical research is to just go for it and take part. She would like to see more adverts, leaflets and literature about the 100,000 Genomes Project in hospital waiting rooms and GP surgeries so that more people could learn about the project. She is hoping that genomic research will improve our understanding of the genetic causes of illness and help conquer diseases like cancer.

Vanessa hopes for some communication from Genomics England about results, and would like them to contact her if they plan on using her data for anything further.

Vanessa suggests having a little card, like the one used for kidney donations, on the project in waiting rooms.

Age at interview 60

Gender Female

Age at diagnosis 54

Vanessa supports genomic medicine to advance medical knowledge for illness but she does not agree with it being used by parents to choose the gender of their baby.

Age at interview 60

Gender Female

Age at diagnosis 54

Vanessa was invited to take part in the project while she was waiting for premedication for her breast cancer surgery. Although she was happy to participate the nurse didn’st have much time to explain before signing the consent form.

Age at interview 60

Gender Female

Age at diagnosis 54

Vanessa was invited to take part by a nurse when she was waiting for an appointment. She only wanted to know if participating would involve taking any trial drugs. The nurse explained that it wouldn’st.

Age at interview 60

Gender Female

Age at diagnosis 54

Vanessa has cancer and says she has benefited from medical research and now it’s her turn to help others.

Age at interview 60

Gender Female

Age at diagnosis 54