Robert
Robert has had a back problem his entire adult life. He developed Chronic Obstructive Pulmonary Disease (COPD) due to his occupation. Steroid treatment for COPD caused osteoporosis in his right hip and shoulder. He has had a deep vein thrombosis (DVT), pulmomary embolism and heart attack.
Robert explains a history of problems with his legs and back going back to 16 years of age. He was found to have a trapped nerve on investigation. He has vertebrae missing in his back. He refused surgical intervention as he would have had to give up work. Instead, he used to wear a corset and avoid sideways movement, e.g. by giving up playing cricket and gardening.
Robert lives alone. He had a fall outside a year ago whilst maintaining the outside of his home, which he thinks damaged a nerve in his arm and is causing problems with writing. Physiotherapy initially worked, but after 3 sessions he was back to square one and stopped going.
Earlier in the year he had to call 999 because he couldn’t breathe and was admitted to hospital via A&E. On investigation, it was found out that he had been bleeding internally, attributed to being on warfarin.
Robert feels he has received very good care that does not square with media reports about NHS services. There are eight doctors at his local practice and he doesn’t mind which one he sees. He has to adapt to what he does as his conditions progress. Currently, any exertion causes difficulties.
He offers the following advice for patients: And absolutely the best way, I accept what I’ve got and I think that’s the main thing you’ve got to do. If you’ve got anything, especially if it’s chronic, you’ve got to accept it and, what’s more, carry out the instructions and take the medication that you’re given. I think they’re quite good people, intelligent people, the folk who deals with you and I try and understand ‚the instructions I carry out, and then I do my own work as well and I do attend lectures actually. I’m in a Breathe Easy group.