Steven
Steven developed psoriasis at age 14. He has used medicated shampoos and shower gels, undergone light therapy and his current treatment is Dithrocream (dithranol). He tries to be positive in the way that he copes and says he is now more accepting of having psoriasis.
Steven developed his first patch of psoriasis on his scalp in 2007. His GP diagnosed it as psoriasis, knowing that Steven’s father also has the condition, and prescribed a shampoo treatment. After 2 years, Steven began to develop psoriasis on other parts of his body, such as his arms, back and thighs. Steven says that it was good that his psoriasis developed only gradually because it gave him time to get used to it. Steven has been referred to dermatology specialists 3 times. The first time he was given creams which seemed to make no improvement. The second dermatologist referred him for phototherapy treatment without even looking at his psoriasis. This was disappointing but he felt reassured when the nurses examined his skin and confirmed that he was a good candidate for the treatment. The psoriasis on Steven’s body cleared up for 6-8 months after phototherapy, although he still had some patches on his head. Steven is currently using a course of Dithrocream (dithranol) to manage his psoriasis: he has to leave a cream on for an hour every day before washing it off, and this moves up to a stronger cream every few days after testing it on a small patch. He has seen some improvement, although he has noticed one side effect in that his psoriasis patches are looking more purple/pink. Steven uses medicated shampoos and shower gels, but dislikes how these smell and feel.
Steven tries to be positive in coping with psoriasis, preferring to learn to laugh about it than to cry about it. One way he found helpful at first was to name the patches, but he stopped when doing this became a bit obsessive. There have been a few days when Steven has felt down about having psoriasis, but these times are very rare and usually occur when other stressful things are also happening. Steven has experienced other people asking questions and making comments about his psoriasis. Sometimes these are well-intention, such as thinking he has an insect bite, but he once heard someone say nasty things. Steven tries to be prepared to answer and respond to other people’s ignorance about psoriasis. There have been occasions when Steven has felt self-conscious about his psoriasis, such as when he has been swimming, but tries not to let this stop him doing anything. He remembers feeling really triumphant when he began wearing shorts in the summer a few years ago. He is also very aware of his skin flaking, so he hoovers his bedroom and car often, and brushes off his desk at work frequently. He finds that hair gel is good because it can keep his hair in one place so that skin flakes won’t fall from his scalp and means he can sometimes style his hair to cover patches on his upper forehead.
Steven does a lot of research about psoriasis, but he has found it difficult to find the right level’ of information about it. He also says that the online discussion forums he’s seen were quite out dated and inactive. He feels that there is a gap about psoriasis to be filled that balances personal experience and scientific information. Steven thinks that it can be especially difficult for young people to learn live with a life-changing health condition. His advice is to other young people is to know that they are not alone with having psoriasis and to keep seeking the right treatments for them.