Davinder – Interview 23
Davinder was diagnosed with pancreatic cancer in 2009. She had a distal pancreatectomy to remove the tumour, which was in the tail of the pancreas. She did not need any other treatment. She still has some abdominal discomfort, but is slowly recovering.
In July 2009 Davinder noticed that she felt much more tired than usual. Also, when she lay down her stomach felt uncomfortable, and she could feel a thumping, pulsing sensation under her left rib. Davinder went to see her GP who sent her to the hospital. The GP told Davinder that she probably had a cyst.
When Davinder got to the hospital she had an ultrasound and other investigations, including a CT scan. She went back to see the consultant, who told her that she had a problem with her pancreas, and it was probably cancer. This was devastating news to Davinder and she felt quite depressed for a couple of days. However, she soon decided to be positive and trust in her body’s healing power.
Davinder had to return to hospital several times for blood tests, for an endoscopy and for a biopsy. She was very ill after the endoscopy, because there was a tear in her intestine. She needed antibiotics, liquids and rest. The consultant confirmed that Davinder had cancer in the tail of her pancreas, and he told her she would need major surgery.
Davinder decided she would have the operation. She spent four hours in hospital being assessed to see if she was fit to have the operation. She was considered fit for surgery so was given a date for the operation. The surgeon explained that she was going to have a distal pancreatectomy and that during the operation the spleen might be damaged and might have to be removed.
The operation took place on 5th November 2009. It took about three hours, and went well. The surgeon did not need to remove the spleen. Davinder woke up in the critical care unit. Shed had an epidural so was not in pain but she felt drowsy. She had drains, a catheter and intravenous fluids. She could sip water. On the second day after surgery she got out of bed but felt faint and had to be lifted back to bed. She felt very tired.
On the third day Davinder enjoyed a cup of tea. She was moved into a ward. She felt comfortable and was given morphine and tramadol for pain. After a few days she started eating small quantities of food, such as soup. Gradually all the tubes were removed and on 13th November Davinder went home.
The first few days and weeks at home were difficult. Davinder needed a lot of care and special equipment, such as a bed-rest, which her sister bought for her. The District nurse also got her a grab rail for free from the NHS. Davinder thinks that the hospital physiotherapists should have given her better information and should have prepared her for convalescence at home.
One day, after a bath, Davinder felt severe pain in her abdomen (tummy). Her sister phoned the specialist nurse who told her to call an ambulance. Davinder was taken to the A & E department of her local hospital. There she had various blood and urine tests and a CT scan. The doctors said that she had a urine infection but otherwise everything was alright. She was given antibiotics. Two days later Davinder went home.
Three days later Davinder had to go back to A & E because she had more pain. Tests showed that she had an abdominal infection as well as a urinary infection. She was given more antibiotics and was in hospital for five more days. Davinder refused to leave hospital until the ward sister had phoned the GP to make sure that she had help with personal care when she returned home. Davinder thinks that the hospital staff should have organised this help for her before she left the ward after her first operation.
Now, four months after the operation, Davinder’s abdomen is still very tender and the incision is still sore. She is not very satisfied with the speed of her recovery. However, she can go out, drive and is able to present her radio show, which she does as a volunteer. When she has pain or discomfort in her abdomen she finds that a gentle massage or a hot bath or a hot water bottle can help a great deal.
Davinder had a follow-up appointment with the consultant. She had a CT scan, which showed that the cancerous tumour had all been removed and had not spread anywhere else. The doctors told Davinder that she does not have to have any chemotherapy or any other treatment, and must return for another check-up in August 2010.
We spoke to Davinder in 2010