Bette started experiencing pain more than 20 years ago, and was diagnosed with fibromyalgia by a rheumatologist. Bette thinks she missed out on self-management support after her diagnosis and would benefit from a course to learn more coping strategies.

Kath started to experience pains in 2013 and was diagnosed with fibromyalgia by her GP. She feels she would benefit from a more detailed examination and specialist advice on how to self-manage her fibromyalgia.

David is 62 and before giving up his job, worked as a self-employed handyman and bicycle mechanic. He is married with two adult children, who are 27 and 29. Ethnicity: White British. David lost his mother to MND as a teenager. After developing symptoms in 2019, he was diagnosed with MND caused by the C9orf72 genetic variant. David tries to keep up with research and hopes that having information will help members of his family make informed choices.