Experiences of genetic testing for Alport syndrome
Many people we spoke to said that they had gone for genetic testing and genetic ‘counselling’. Testing and genetic counselling were talked about interchangeably. […]
Many people we spoke to said that they had gone for genetic testing and genetic ‘counselling’. Testing and genetic counselling were talked about interchangeably. […]
Because pre-eclampsia can be very dangerous, women’s birth options were sometimes limited for those we interviewed. Many had caesareans sections – either as an […]
For about half of the parents we spoke to, the pregnancy ended due to premature labour or the waters round the baby breaking very […]