Profiles

Here, you can find any of the interviews on this site.



Robin

Robin's wife has had MS for 20 years. They live together in the house where they brought up their children.

  • Background

    Robin, age 72, is a retired TV producer and Open University lecturer. He is Caucasian/English, married with four children.

  • Age at interview 72
  • Sex/Gender Male
  • Stella

    Stella's partner was diagnosed with MS 3 years before we spoke to her.

  • Background

    Stella, age 45, works as a freelance language teacher and also teaches mindfulness techniques for a women’s charity. She is Caucasian/German, single, living with her partner and has no children.

  • Age at interview 45
  • Sex/Gender Female
  • Paul Z

    Paul's wife has had MS for 20 years. She is now profoundly disabled and Paul is her main carer. He is supported in his caring by his children, who visit frequently, and by health and social care workers.

  • Background

    Paul, 56, is a former learning resources manager. He is white British, married with two adult children.

  • Age at interview 56
  • Sex/Gender Male
  • Bernard

    Bernard's wife was diagnosed with MS at the age of 43. Her mobility has declined over the years, but they still share household tasks.

  • Background

    Bernard is 59 years old and planning to retire soon from his job as a secondary school teacher. He is white British and has two adult children. Bernard is looking...

  • Age at interview 59
  • Sex/Gender Male
  • Elliott

    Elliott was born with a cleft lip and palate. He works as a retail manager and enjoys going to the gym and socialising in his spare time.

  • Background

    Elliott is a retail manager and is single. Ethnic background: White British

  • Age at interview 20
  • Sex/Gender Male
  • Gemma

    Gemma was born with a cleft lip and palate and has had treatment as a child and adult. Gemma is pursuing a career in teaching children.

  • Background

    Gemma is single and studying for a degree in primary education. Ethnic background: White British

  • Age at interview 18
  • Sex/Gender Female
  • Mary W

    Mary is a primary school teacher and she was born with a unilateral cleft lip and palate and her youngest daughter was born with a bilateral cleft lip and palate. Mary had her lip and palate repaired in her first year of life and has had additional treatment for cleft related issues as a teenager and as an older adult.

  • Background

    Mary is a primary school teacher and has 3 children who currently range from 14 to 32 years of age. Ethnic background: White British

  • Age at interview 53
  • Sex/Gender Female
  • Alex

    Alex was born with a unilateral cleft lip and palate and is currently studying for a degree in psychology. Alex has had ongoing treatment for her cleft palate including a bone graft operation. Alex enjoys fencing and enters competitive events, and she also plans to take a year out travelling.

  • Background

    Alex is a full-time psychology student. Ethnic background: White British

  • Age at interview 19
  • Sex/Gender Female
  • Laura

    Laura's daughter was diagnosed with a cleft palate when she was 3 months of age. Despite Laura's concerns about her daughter's feeding and repeated visits to her GP the cleft palate was undiagnosed, causing a great deal of distress for Laura and her partner. Laura's daughter and her father have also been diagnosed with DiGeorge syndrome (also known as 22q11.2 deletion syndrome).

  • Background

    Laura is a trained nursery nurse and is 22 years of age. Laura and her partner have one daughter aged 6 months. Ethnic background: White British

  • Age at interview 22
  • Sex/Gender Female
  • Jenny

    Jenny is married and has her own clinical psychology practice. Jenny's daughter was born with a cleft palate that was diagnosed approximately 24 hours after her birth.

  • Background

    Jenny is a clinical psychologist and is married with a son aged 5 years and a daughter aged 3 years. Ethnic background: White British

  • Age at interview 36
  • Sex/Gender Female