Profiles

Here, you can find any of the interviews on this site.



Interview 54

Her mother is cared for in her own home; initially she was supported by a cleaner who had been with her for 20 years. Since the cleaner retired they have installed a live-in carer. Arrangements for transfer to residential care in the near future are being considered.

  • Background

    Carer is one of four daughters looking after their widowed mother. She has two daughters of her own and works as a script editor. Her mother never went to work.

  • Age at interview 45
  • Sex/Gender Female
  • Interview 50

    His wife developed symptoms in her sixties and guessed herself what it was. Dementia progressed but Alzheimer's was never actually confirmed. They had separation difficulties with day care but an easy transfer to residential care. She was treated with tegretol because she developed epilepsy.

  • Background

    Husband caring for his wife. They have two children. Family history of Alzheimer’s disease. He is a retired apple farmer and his wife is a retired part-time farm shopkeeper.

  • Age at interview 72
  • Sex/Gender Male
  • Interview 38

    He cared for his partner at home, with the help of friends, relatives and neighbours while he worked part-time. His partner was treated with Aricept and Rivastigmine; he was admitted for respite care in 2000 and never returned home after that.

  • Background

    They are a same sex couple who have been together for 34 years. He is a  medical laboratory manager and his partner owned his own business in the industrial components...

  • Age at interview 52
  • Sex/Gender Male
  • Interview 31

    He gave up work to be a full time carer but when she took to her bed for several months it was decided that she needed residential care. As she refused, it was necessary to section her to make the transfer possible.

  • Background

    Carer is a husband in his fifties looking after his wife who was diagnosed with Pick’s disease. They have three children.

  • Age at interview 57
  • Sex/Gender Male
  • Interview 29

    His 65 year old mother had lived alone but consented to come and live with him. After a few months he realised he could not care for her adequately while continuing to work and she went into residential care.

  • Background

    Carer is a married doctor looking after his mother with the help of his sister. Their mother is a retired teacher.

  • Sex/Gender Male
  • Interview 25

    She cares for her husband at home. He was terrified when left in respite care so she removed him within hours. He later developed Parkinson's disease. He was admitted to hospital for assessment and subsequently transferred to residential care.

  • Background

    She cares for her husband, who is 18 years her senior. They have no children.

  • Age at interview 60
  • Sex/Gender Female
  • Interview 23

    She has been able to cope with caring for her husband at home. He attends a day centre and he has regular respite care. She doesn't feel ready to consider full-time residential care for him but has felt it necessary to look out for homes which might be suitable.

  • Background

    Carer who looks after her partner who has Pick’s disease at home. He was diagnosed in 2000. She is a a former teacher and he was a policeman. Between them...

  • Age at interview 62
  • Sex/Gender Female
  • Interview 22

    She cared for her husband at home until very recently when he was admitted to residential care. Before this he attended a day centre with residential respite every 6 weeks. Later he was put on Exelon but taken off when he developed side-effects.

  • Background

    Carer is mother of four who gave up her job as a social worker to look after her husband at home. He was diagnosed in 1997. He was an army...

  • Age at interview 61
  • Sex/Gender Female
  • Interview 21

    Her husband developed Pick's disease when he was 57. The patchy nature of his dementia made it difficult to convince people that his problems were real. Delay in getting the diagnosis meant they experienced extreme difficulties in accessing his health insurance.

  • Background

    A former nurse and mother of four who cares for her husband, a doctor, at home. He was diagnosed in 1997. Also providing distance care for her elderly mother with...

  • Age at interview 52
  • Sex/Gender Female
  • Interview 16

    She cared for her husband  at home for 7 years. When things got really difficult he spent 18 months in residential care, after which she was able to bring him home again with the additional support of either a live-in carer, or two live-in carers in rotation, working alternate weeks.

  • Background

    Carer is wife of a man who first developed Alzheimer’s disease when he was 50. He was diagnosed in 1991 and treated with Exelon. They have two children. She and...

  • Age at interview 62
  • Sex/Gender Female