Here, you can find any of the interviews on this site.
Eleanor was diagnosed with pulmonary stenosis. Treatment: a balloon catheter operation at six weeks old. No further treatment planned. Current medication: none.
Diagnosed at 6 weeks old. Parents marital status: married. Occupation: Mother-Full time Mum, Father-long term sick. Other children: no other children. The family do not live close by to a...
Taylor was diagnosed with a complete Atrioventricular septal defect (AVSD). Treatment: surgery at 6 months old. No further treatment planned. Current medication: none.
Diagnosed during pregnancy (25 weeks). Parents marital status: married. Occupation: Mother-Full time Mum. Other children: an older child. The family do not live close by to a specialist hospital.
Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment' A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.
Diagnosed during pregnancy (22 weeks). Parents marital status: single. Occupation: Mother-Full time Mum. Other children: twin brother and one older child. The family live close by to a specialist hospital.
Joshua was diagnosed with Atrioventricular Septal Defect (AVSD) and Down's syndrome. Treatment: surgery at 4 months to repair his AVSD. No further treatment planned. Current medication: aspirin.
Diagnosed at 2 days old. Parents marital status: married. Occupation: Mother-Children’s Book Designer, Father-Advertising. Other children: no other children. The family live close by to a specialist hospital.
Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment: Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication: none.
Baby’s Age at interview: 3.5 years. Diagnosed during pregnancy (24 weeks). Parents marital status: married. Occupation: Mother-Doctor, Father-Doctor. Other children: one older child. The family live close by to a...
Jack was diagnosed with Supraventricular Tachycardia (SVT), which was later diagnosed as Wolff-Parkinson-White Syndrome. Treatment: none given yet. A radio-frequency catheter ablation is planned at age 5-7 years. Current medication: none, amiodarone until age 1yr.
Age at interview: 16 months. Diagnosed during pregnancy (27 weeks). Parents marital status: cohabiting. Occupation: Mother-Nursery Manager, Father-Contracts Director. Other children: no other children. The family live close by to...
Ischaemic heart disease diagnosed 2001. Heart bypass 2002. Heart failure 2002.
Retired GP; married with 2 children.
Dilated cardiomyopathy diagnosed 2001. Stent 2002. Heart failure diagnosed 2002. Bi-ventricular pacemaker 2003.
Retired nursing auxiliary; widowed with 2 children.
Diabetes for many years. Heart attacks 1992, 1995, 1998. Not sure when heart failure diagnosed, possibly 1998.
Receptionist/telephonist; single with no children.
Felt breathless 1999. Heart failure diagnosed in 2000.
Retail manager; married with 2 children.
