Profiles

Here, you can find any of the interviews on this site.



Interview CH18

Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.

  • Background

    Diagnosed at one week old. Parents marital status: married. Occupation: Mother-Full time Mum, Father-Ex-Dockyard Worker (now caring for son). Other children: one older child. The family do not live close...

  • Age at interview 5
  • Sex/Gender Male

    • Interview CH17

    Their son was diagnosed with a ventricular septal defect (VSD). Treatment' surgery to close hole and repair leaky valve at 3 years old. No further treatment planned. Current medication: none.

  • Background

    Diagnosed at one week old. Parents marital status: married. Occupation: Mother-Nursery Nurse, Father-Engineer. Other children: a twin sister. The family live close by to a specialist hospital.

  • Age at interview 4
  • Sex/Gender Male

    • Interview CH16

    Eleanor was diagnosed with pulmonary stenosis. Treatment: a balloon catheter operation at six weeks old. No further treatment planned. Current medication: none.

  • Background

    Diagnosed at 6 weeks old. Parents marital status: married. Occupation: Mother-Full time Mum, Father-long term sick. Other children: no other children. The family do not live close by to a...

  • Age at interview 5
  • Sex/Gender Male

    • Interview CH15

    Taylor was diagnosed with a complete Atrioventricular septal defect (AVSD). Treatment: surgery at 6 months old. No further treatment planned. Current medication: none.

  • Background

    Diagnosed during pregnancy (25 weeks). Parents marital status: married. Occupation: Mother-Full time Mum. Other children: an older child. The family do not live close by to a specialist hospital.

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH14

    Sam was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems: No spleen and mal-rotation of the gut. Treatment' A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More surgery planned. Current medication: warfarin, penicillin.

  • Background

    Diagnosed during pregnancy (22 weeks). Parents marital status: single. Occupation: Mother-Full time Mum. Other children: twin brother and one older child. The family live close by to a specialist hospital.

  • Age at interview 3
  • Sex/Gender Male

    • Interview CH13

    Joshua was diagnosed with Atrioventricular Septal Defect (AVSD) and Down's syndrome. Treatment: surgery at 4 months to repair his AVSD. No further treatment planned. Current medication: aspirin.

  • Background

    Diagnosed at 2 days old. Parents marital status: married. Occupation: Mother-Children’s Book Designer, Father-Advertising. Other children: no other children. The family live close by to a specialist hospital.

  • Age at interview 1
  • Sex/Gender Male

    • Interview CH12

    Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment: Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication: none.

  • Background

    Baby’s Age at interview: 3.5 years. Diagnosed during pregnancy (24 weeks). Parents marital status: married. Occupation: Mother-Doctor, Father-Doctor. Other children: one older child. The family live close by to a...

  • Sex/Gender Female

    • Interview CH11

    Jack was diagnosed with Supraventricular Tachycardia (SVT), which was later diagnosed as Wolff-Parkinson-White Syndrome. Treatment: none given yet. A radio-frequency catheter ablation is planned at age 5-7 years. Current medication: none, amiodarone until age 1yr.

  • Background

    Age at interview: 16 months. Diagnosed during pregnancy (27 weeks). Parents marital status: cohabiting. Occupation: Mother-Nursery Manager, Father-Contracts Director. Other children: no other children. The family live close by to...

  • Sex/Gender Male

    • Interview HF38

    Ischaemic heart disease diagnosed 2001. Heart bypass 2002. Heart failure 2002.

  • Background

    Retired GP; married with 2 children.

  • Age at interview 59
  • Sex/Gender Male

    • Interview HF36

    Dilated cardiomyopathy diagnosed 2001. Stent 2002. Heart failure diagnosed 2002. Bi-ventricular pacemaker 2003.

  • Background

    Retired nursing auxiliary; widowed with 2 children.

  • Age at interview 66
  • Sex/Gender Female