Here, you can find any of the interviews on this site.
Thomas was diagnosed with Tricuspid Atresia, Transposition of the Great Arteries and Coarctation of the Aorta. Treatment: An arterial switch operation at 36 hrs old followed by a BT shunt at 5 months, a Kawashima at 33 months and a Fontan at age 7. Current medication: wafarin.
Diagnosed during pregnancy (18 weeks). Parents marital status: Separated. Occupation: Mother-Full time Mum. No other children. The family do not live close to a specialist hospital.
Their son was diagnosed with Hypoplastic Left Heart Syndrome. Treatment: Japanese Stage 1 Norwood at 4 days old and Stage 2 Norwood at 4 months old. Stage 3 is planned for pre-school. Heart Scan at local hospital every 3 months. Current medication: aspirin, Captopril. Monthly injection to prevent bronchial infections.
Baby’s Age at interview: 6 months. Diagnosed during pregnancy (20 weeks). Parents marital status: married. Occupation: Mother-Full time Mum, Father-Own Business. Other children: twin brother & 2 older children. The...
Vikram was diagnosed with a large ventricular septal defect (VSD) at 3 months old. He had corrective open heart surgery to close the VSD at four and a half months old. He is recovering well and no further treatment is expected. Current medication: none.
Baby’s Age at interview: 9 months. Diagnosed at 3 months old. Parents marital status: married. Occupation: Mother-Full time mum, Father-Information Technology. Other children: one older child. The family do not...
Their daughter was diagnosed with pulmonary atresia, VSD, and an overiding aorta. Treatment: closed heart surgery (shunt) at 11 days old, closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2 and a half yrs old. Current medication: none.
Diagnosed at 10 days old. Parents marital status: married. Occupation: Mother-Full time mum (trained as a GP), Father-Curate. Other children: one younger child. The family lived close by to a...
Lee was diagnosed with Wolff-Parkinson-White Syndrome. Treatment: Flecainide up until 14 months old. Possibility of radio frequency ablation when Lee is older (age 10 plus). Current medication: none.
Diagnosed at 14 days old. Parents marital status: separated. Occupation: Mother-Civil Servant, Father-Painter & Decorator. Other children: 4 older children (2 were diagnosed with a heart murmur). The family do...
Noah (2000-2001) was diagnosed with critical aortic stenosis at 12 hours old. He died aged 4 and a half months old following three operations to try to repair his heart. Noah spent 4 and a half months in intensive care.
Parents marital status: cohabiting. Occupation: Mother-Researcher, Father-Internet programmer. Other children: one child aged 5 weeks old. The family do not live close to a specialist hospital.
Toby was diagnosed with Tetralogy of Fallots and mild branch pulmonary stenosis at six weeks old. Treatment: he had a catheter at 6 months old and corrective open heart surgery at 8 months old. Current medication: none.
Diagnosed at 6 weeks old. Parents marital status: married. Occupation: Mother-Special Needs Teacher, Father-Special Needs (Night Care). Other children: one older child. The family live 2 hours away from the...
Luke (1996-2002) was diagnosed with coarctation of the aorta, transposition of the great arteries, VSD, pulmonary stenosis and double inlet left ventricle. He died when he was nearly 6 yrs old after his fourth operation (not including cardiac catheters).
Senior Housing Support Officer, single parent for 4 years. Luke’s natural father left before he was born ceasing all contact by 36mths. Met current husband in 2000, he had a...
Their son was diagnosed with mirror image, transposition of the great arteries, left sided valve atresia and pulmonary stenosis. Treatment: A BT Shunt at six months old, followed by the Stage 1 Glenn procedure at 4.5 yrs. Cardiac catheter operations every 2 yrs. Further surgery is planned. Current medication: aspirin.
Diagnosed at one week old. Parents marital status: married. Occupation: Mother-Full time Mum, Father-Ex-Dockyard Worker (now caring for son). Other children: one older child. The family do not live close...
Their son was diagnosed with a ventricular septal defect (VSD). Treatment' surgery to close hole and repair leaky valve at 3 years old. No further treatment planned. Current medication: none.
Diagnosed at one week old. Parents marital status: married. Occupation: Mother-Nursery Nurse, Father-Engineer. Other children: a twin sister. The family live close by to a specialist hospital.
