Here, you can find any of the interviews on this site.
Mother knew she was a sickle cell carrier; partner had screening late in pregnancy. She was shocked when the baby was born with sickle cell anaemia. Although the baby is well, she was so afraid of having another affected baby she ended her next pregnancy.
Chef, single, one child aged 2. Ethnic background/nationality: Black African.
Mother discovered from antenatal screening she was a carrier of haemoglobin C. The baby's father was no longer in the UK to be screened. A newborn test showed the baby had SC disorder.
Full-time mother, single, one child aged seven months. Ethnic background/nationality: Black African.
The couple discovered in pregnancy they were both sickle cell carriers. She felt strongly as a Christian that she did not want any diagnostic tests, and has faith her baby will be healthy.
Former safety engineer, married, first pregnancy. Ethnic background/nationality: Black African.
Discovered she was a beta thalassaemia carrier from routine screening during pregnancy. She was not aware she was being tested. Partner was tested and is not a carrier.
Married, full-time mother, in first pregnancy. Ethnic background/nationality: White British.
His partner had routine screening in pregnancy and found she was a sickle cell carrier, so he also had carrier screening. Results unknown at time of interview. No family history.
Student, single. Female partner pregnant for first time. Ethnic background/nationality: Akan, Ghana.
Mother discovered she was a sickle cell carrier in pregnancy; the baby's father was reluctant to have screening. After the birth, she was shocked to discover the baby had sickle cell anaemia. Video and audio clips read by an actor.
Student, married, one child aged seven months. Ethnic background/nationality: Black African.
Mother has hameoglobin SC disorder; partner is a sickle cell carrier. Had CVS in two pregnancies. In third pregnancy chose not to have diagnosis; baby born with sickle cell anaemia and has since had a stroke, which the mother did not realise could happen.
Full-time mother, single, three children aged 10, 8 and 4. Ethnic background/nationality: Black African.
Woman with haemoglobin SC disorder. Husband discovered he was a sickle cell carrier. Had CVS in all three pregnancies. The first and second babies had SC disorder, but the third had sickle cell anaemia. Video and audio clips read by an actor.
Married, three children. Ethnic background/nationality: Black African.
Mother tested in first pregnancy and discovered she was a beta thalassaemia carrier. Husband was also tested and is not a carrier. Both their daughters are carriers. Interview translated into English from original in Urdu and Mirpuri.
Housewife, married to a restaurant owner, two children aged 6 and 3. Ethnic background/nationality: Pakistani.
During first pregnancy couple discovered they were both sickle cell carriers. CVS confirmed the baby did not have the condition and was not a carrier.
Student, single (partnered), in first pregnancy. Ethnic background/nationality: Black African.
