Profiles

Here, you can find any of the interviews on this site.



Harry - Interview 43

Harry's wife was diagnosed with bulbar onset MND two and a half years ago. She is now unable to speak. She finds swallowing very difficult, and has a PEG fitted.

  • Background

    Harry is retired, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 73
  • Sex/Gender Male
  • Dick - Interview 42

    Dick was married to Di, who was diagnosed with MND two and a half years ago (2004). She died 6 months ago, aged 64.

  • Background

    Dick is a local government officer, widowed, with 2 adult step-children. Ethnic background/nationality: White British.

  • Age at interview 55
  • Sex/Gender Male
  • Marcelin - Interview 37

    Marcelin was diagnosed over three years ago (in 2003), after several years of weakness in his arms, and later his legs. He now uses a wheelchair. His speech is unaffected. He continues to work full-time. (Partner Tess also interviewed, MND44).

  • Background

    Marcelin is a research and technology systems engineer, divorced, with 4 children aged 27, 20, 16 and 7. Ethnic background/nationality: African.

  • Age at interview 55
  • Sex/Gender Male
  • Ken - Interview 34

    Ken was diagnosed with rare inherited (familial) form of MND less than a year ago (2006). He has limited arm and leg movement, has a PEG and uses a Lightwriter to speak, but carried on working until a month ago. Interviewed through his wife Chris.

  • Background

    Ken (aged 59) and Chris (aged 60) are a married couple with 3 adult children. Ken retired as a soft furnishing workroom manager. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Male
  • Roger - Interview 41

    Roger was married to Teresa, who was diagnosed with bulbar onset MND. She died a year ago, aged 64, less than six months after the diagnosis.

  • Background

    Roger is a mini-bus driver, widowed, with 5 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Male
  • Martin - Interview 40

    Martin was diagnosed about a year ago in 2006, after a year of weakness in his fingers and hands. Movement in his arms is now very limited, but his legs and speech are not affected.

  • Background

    Martin is an unemployed former building worker, single. Ethnic background/nationality: White British.

  • Age at interview 24
  • Sex/Gender Male
  • Liz - Interview 39

    Liz was diagnosed with inherited form of MND in 2004. (Her father and uncle both had MND). Weakness in her legs progressed to her arms; she is now in a wheelchair. Her speech is unaffected.

  • Background

    Liz is a former hydrologist (environmental scientist), married. Ethnic background/nationality: White British.

  • Age at interview 34
  • Sex/Gender Female
  • Stuart - Interview 05

    Stuart first noticed symptoms (legs shaking) almost 20 years ago. MND diagnosed 9 years ago (1997), after years of tests and investigations. Now uses a wheelchair.

  • Background

    Stuart is a retired electrician, married with 3 grown-up children. Ethnic background/nationality: White British.

  • Age at interview 62
  • Sex/Gender Male
  • Mary - Interview 04

    Mary is the wife of man diagnosed with MND a year before interview (2003). (Couple also interviewed together - see Jack's story MND03).

  • Background

    Mary is a pharmacy assistant, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Female
  • Interview 53

    He had a stroke due to a clot which came from his heart aged 55. The stroke caused right sided weakness and aphasia. Medication' perindopril (blood pressure) simvastatin (cholesterol), warfarin (anticoagulant).

  • Background

    Is a married father of 2 children and is a medically retired home office civil servant. Ethnic background/nationality: White/English.

  • Age at interview 59
  • Sex/Gender Male