Here, you can find any of the interviews on this site.
Ken was diagnosed with amyotrophic lateral sclerosis (ALS) form of MND 5 years ago (2002). His arm muscles were affected first, followed by his leg muscles. His speech is not affected and his condition has progressed more slowly than he originally expected.
Ken is a retired teacher, married with 3 adult children. Ethnic background/nationality: White British.
Cordelia was diagnosed a year ago (2005) with MND after investigations for other conditions including spinal muscular atrophy. She now has considerable muscle weakness.
Cordelia is a married housewife with 6 adult children. Ethnic background/nationality: White British.
Judith was diagnosed with Progressive Muscular Atrophy form of MND two years ago, after consulting two neurologists. Now she uses a wheelchair and mobility scooter.
Judith is a retired English teacher, married with 2 adult children. Ethnic background/nationality: White British.
Penny was diagnosed three years ago (2003) with ALS, after having arm weakness, pains and coughing fits for three years. The condition has progressed quite slowly so far.
Penny is a retired primary school headteacher, married with 2 adult children. Ethnic background/nationality: White British.
Kim was diagnosed with MND (ALS) about a year ago (2005). Now unable to walk she needs help with most daily tasks, but is still working as an occupational therapist and able to drive. Her speech is not affected.
Kim is an occupational therapist, married with 2 children, aged 12 and 10. Ethnic background/nationality: White British.
Paul's diagnosis of progressive muscular atrophy was confirmed 2 years ago (2004) after several years of leg pain and weakness. Now unable to walk and he has limited arm movement. Uses a ventilator, but his speech is not affected. He worked until 6 months ago.
Paul is a retired university IT specialist, married with 2 children, aged 17 and 14. Ethnic background/nationality: White British.
Maryse was diagnosed March 2005. She was told she had 2-3 years to live. Within months she could no longer live independently and moved into a nursing home. Her speech deteriorated rapidly.
Maryse is a retired senior university lecturer, widowed with 2 adult children. Ethnic background/nationality: French.
Tess met her partner, who had already been diagnosed with MND, when volunteering at a sailing club for disabled people. She now lives with him and is his main carer. (See Marcelin, MND37)
Tess is an office worker, living with partner, 1 adult daughter. Ethnic background/nationality: White British.
Harry's wife was diagnosed with bulbar onset MND two and a half years ago. She is now unable to speak. She finds swallowing very difficult, and has a PEG fitted.
Harry is retired, married with 3 adult children. Ethnic background/nationality: White British.
Dick was married to Di, who was diagnosed with MND two and a half years ago (2004). She died 6 months ago, aged 64.
Dick is a local government officer, widowed, with 2 adult step-children. Ethnic background/nationality: White British.
