Here, you can find any of the interviews on this site.
Sylvia was diagnosed a year ago in 2005, after noticing difficulties walking. She can move around at home with a trolley, and uses a wheelchair or scooter outdoors. She uses non-invasive ventilation regularly.
Sylvia is a part-time book-keeper, married to an architect, with 6 adult children (including 4 step-children). Ethnic background/nationality: White British.
Ann was diagnosed with bulbar onset MND within the last 6 months (in 2006), after speech and swallowing difficulties. She is about to have a Percutaneous Endoscopic Gastrostomy (PEG).
Ann is a retired speech therapist, widowed with 2 adult children. Ethnic background/nationality: White British.
Mike was diagnosed with bulbar onset MND 2 years ago in 2005. He is now unable to speak, so was interviewed through his wife Gill. He uses a whiteboard and Lightwriter to communicate. He has a PEG (Percutaneous Endoscopic Gastrostomy).
Mike (aged 54) and Gill (aged 49) are a married couple with 3 adult children. Mike retired as a Fire Master. Gill is a management consultant. Ethnic background/nationality: White British.
Liz was diagnosed with rare inherited (familial) form of MND 8 years ago (1998). Sixth member of her family to be diagnosed. Has weakness in her arms and legs, and some speech difficulties. Has a PEG but does not use it yet.
Liz is a former classroom support worker for special needs, divorced, with 2 children aged 18 and 17. Ethnic background/nationality: White British.
Sarah was diagnosed 7 years ago when 7 months pregnant with her second baby in 2000. Now she cannot use her arms or walk unaided, and her speech is affected, so she uses voice software to communicate.
Sarah is a full-time mother (formerly secretary), divorced, with 2 children aged 6 and 9. Ethnic background/nationality: White British.
Peter was diagnosed with primary lateral sclerosis (PLS) 8 years ago (1998). Symptoms progressed quickly at first, but now more slowly. His speech was severely affected, so he was interviewed through his wife Ann. His mobility is also affected.
Peter (aged 64) and Ann (aged 58) are a married couple, both retired teachers, with 2 adult children. Ethnic background/nationality: White British.
Speedy' was diagnosed with primary lateral sclerosis (PLS) nearly 2 years ago (in 2005) after 2 years of increasing leg weakness. She now uses a wheelchair and a hand-operated car.
Speedy’ is a full-time mother, single with 1 son aged 13. Ethnic background/nationality: White British.
Jim was diagnosed 2 years ago (2005) with Progressive Muscular Atrophy (PMA) form of MND. His legs and arms are affected but not speech.
Jim is a former teacher, married with 1son, aged 15. Ethnic background/nationality: White British.
Roland was diagnosed 7 years ago (1999) with Progressive Muscular Atrophy (PMA) form of MND. His hand muscles are affected but not his speech.
Roland is a computer consultant, living with partner, with two children in their twenties. Ethnic background/nationality: White British.
James was diagnosed with Primary Lateral Sclerosis (PLS) 15 years ago (1991). His wife also had MND and died 3 years ago, 2 years after her diagnosis.
James is a retired carpenter/joiner, widowed. Ethnic background/nationality: White British.
