Here, you can find any of the interviews on this site.
Shyam was diagnosed with MND about six months ago (2006). He has difficulty walking and uses a wheelchair. His speech is slowing down and his voice is changing.
Shyam is a graphic designer/book illustrator, married with 1 adult daughter. Ethnic background/nationality: Indian British.
Slawomir was diagnosed 3 months ago, 18 months after first noticing weakness in his leg. He wonders if he may in fact have Lyme Disease. He can still walk and drive.
Slawomir is a company director, divorced with 1 son aged 16. Ethnic background/nationality: Polish.
Sue was diagnosed with bulbar onset motor neurone disease less than a year ago (2006). She is now unable to speak and uses a laptop with voice software. Her arms and legs are still relatively strong.
Sue is a retired business administrator, married with 4 children aged 37, 33 and twins aged 22. Ethnic background/nationality: White British.
Pauline was diagnosed with PMA (progressive muscular atrophy) about 2 years ago (2005), after several years of leg weakness. She cannot walk far and uses a wheelchair, but is still able to work full-time.
Pauline is a freelance market research consultant in the pharmaceutical industry, married with 2 children, aged 24 and 22. Ethnic background/nationality: White British.
Jack was diagnosed with MND a year before interview (2003), after some years of leg pain and stiffness. Symptoms have progressed slowly, still mainly leg weakness. He now uses a walking frame. (Wife Mary present, also interviewed separately MND04).
Jack is a retired graphic designer, married with 3 adult children. Ethnic background/nationality: White British.
Audrey first noticed symptoms 11-12 years ago. Diagnosis confirmed three years later (1995). Still living at home with support from a daily carer and respite care in a hospice.
Audrey is a retired post office clerk, widowed, with 2 grown-up stepchildren. Ethnic background/nationality: White British.
Jenny is the daughter of a man who was diagnosed in 2001 with motor neurone disease at the age of 81, and who died 4 months later. He was ill for a year before diagnosis.
Jenny is a married housewife and mother of three children aged 18, 16 and 13. Ethnic background/nationality: White British.
Vim was diagnosed just over a year ago in 2006 with bulbar onset MND. His speech is affected but he can still talk, and he can still walk independently. He has retired early.
Vim is a retired retail manager, married with 2 children aged 25 and 21. Ethnic background/nationality: British Asian.
Michael was diagnosed less than a year ago in 2006 after noticing weakness in his right arm. His arm weakness remains his main symptom, and it has got worse. Currently he is on sick leave from work.
Michael is a business manager (motor sales), married with 2 children, aged 11 and 9. Ethnic background/nationality: White British.
Phil was diagnosed just over a year ago, after nearly 2 years of leg weakness. He is still able to walk at home but uses a wheelchair and scooter outdoors. He has some weakness in his right arm.
Phil is a retired transporter fleet controller, married, with 2 adult children. Ethnic background/nationality: White British.
