Here, you can find any of the interviews on this site.
Pete has granulomatosis with polyangiitis (GPA), a type of ANCA associated vasculitis which has affected his hearing and kidneys. After being well for several years, Pete relapsed in March 2020 just before the first COVID-19 lockdown.
Pete is a retired quantity surveyor who lives with his wife. Ethnic background: White Scottish.
Karen has eosinophilic granulomatosis with polyangiitis (EGPA), a type of ANCA associated vasculitis previously known as Churg-Strauss syndrome. She has found exercise and a calorie-controlled diet an important part of her recovery.
Karen is a retired insurance company chief executive who now does freelance work for an online estate agent. Ethnic background: White English.
Peter has microscopic granulomatosis with polyangiitis (MPA), a type of ANCA associated vasculitis. It was diagnosed after Peter collapsed with a brain bleed. He feels an important part of his ongoing recovery is having support to manage his depression.
Peter is a retired marketing consultant. He and his wife have two grown-up children and three grandchildren. Ethnic background: White British.
Gail has eosinophilic granulomatosis with polyangiitis (EGPA), an ANCA associated vasculitis previously known as Churg-Strauss syndrome. She;d like services to take a team approach when people with unexplained symptoms aren't responding to treatment.
Gail is medically retired from her work as a health visitor. She has just started a part-time job in social support. Gail is divorced with two grown-up daughters and is...
Systemic vasculitis affected Dawn's ears, nose and eyes. She needed a major operation to repair her collapsed nose. Dawn is keen that doctors and nurses have support and training to recognise vasculitis so it can be treated before further damage is done.
Dawn worked for 17 years as a learning support assistant in a mainstream primary school. She left two years ago to care for her parents. Dawn lives with her father,...
Nicola has microscopic polyangiitis (MPA), a type of ANCA associated vasculitis that has affected her kidneys. Fast action by her GP meant that she was diagnosed and began treatment in less than a week.
Nicola, a former teacher, is chief executive of a charity that offers baby loss counselling and support to families. She lives with her husband and two sons. Their newborn son,...
Isabella has eosinophilic granulomatosis with polyangiitis (EGPA), a type of ANCA associated vasculitis previously known as Churg-Strauss syndrome. Isabella would welcome the opportunity to see a vasculitis specialist as she has some unanswered questions.
Isabella is a retired local government administrator. She lives on a remote island and is married with two grown-up daughters. Ethnic background: White Scottish
Sharon has microscopic polyangiitis (MPA) PR3, a type of ANCA associated vasculitis. This affected her kidneys badly, and she has had a kidney transplant. She says she can do the things she enjoys by planning carefully and always being ready to adapt.
Sharon worked full-time in early years education. She hoped to return but ill-health has made this impossible, and she resigned three months ago. Sharon is married with three grown-up children....
Jane has two rare autoimmune diseases. Primary biliary cholangitis, affecting her liver, developed in 2005. Then, after several years of additional symptoms, MPO positive AAV was diagnosed in 2017. Jane has learnt to enjoy life at a slower pace.
Ill health meant Jane retired four years ago from her career as a pharmacist then spent two years as a shop assistant before giving up work completely. Jane is married...
Wendy has granulomatosis with polyangiitis (GPA), an ANCA associated vasculitis affecting her lungs, eyes, nose, mouth, ears, nerve endings and joints. Her vasculitis is difficult to control, and she has given a lot of thought to living and dying well.
Wendy is medically retired from her career as an occupational therapist, where she worked in clinical practice, teaching and research. Wendy is divorced, with grown up children. Ethnic background: White...
